Special Needs Families

Seek And You Shall Find

/ Gardy Loo Pismire / 4 Comments

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In a couple of weeks we will be leaving for South Korea. This is a trip which will take our three children back to their homeland. Back to a place where they will “look” like they belong but will not understand the language nor the customs that an individual would who had lived there for their entire life. This will be a trip, unlike the last time, where they will be able to understand the ping-pong looks and stares that people will inevitably give us as they size us up as a family; most smiling but some frowning; as they label our children different from “them.” It’s a trip where they will be in the majority, while we, their caucasian parents, will be in the minority; a role reversal that they can see occur right in front of them with their own two eyes…one which may have epic implications.

I hope that my kids will see the beauty of their first country and begin to feel pride in themselves as Korean-Americans. I hope that the anxiety of autism will not overtake my sons as we walk through crowded markets and experience new ways of doing things. I hope that these amazing children will become stronger in their belief that we humans are essentially all the same and that we share many of the same hopes and dreams as everyone else on the planet so we must treat others as we ourselves want to be treated. And I hope that they find the things that they are looking for, both big and small, that will fill the holes in their hearts that adoption itself creates.

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My wish for them is that they realize that the circumstances of their birth are just that…circumstances… that have nothing to do with them and that these circumstances do not determine whether they are “good” or “bad”  people. That they are who they are… not just due to their early experiences but mostly because of what they have put into themselves to create the work of art that they hang on the wall to show the world.

Korean…American…Californian…Autistic…Thoughtful…Creative… Intelligent…Giving…Athletic…Charming…Inquisitive…Happy…Caring…Interesting… all despite being raised by lovingly flawed parents.

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I hope Korea gives them the chance they deserve and I hope they give the same back to their Motherland. I hope the rich culture, the old stories, the ancient temples, the colorful folk songs and the flavorful food etch themselves into our children’s psyche so that they can reach for them in the future when they need a bit of understanding about who they are and who they can become. Because finding a bit more of yourself and what you are made of is a gift no matter where and when it happens.

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So my hope is that they find those gifts that will be abundant and ever-present as we tour their homeland. May they recognize what it is they need to witness and take it away for themselves and their souls. And may they find these gifts as freely as one finds shells laying on a sandy beach, so that they may they gather them up in their pockets and examine them on another day as they are needed throughout their lives.

Find what you need my sweet children, be happy, and be free!

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Friendship

/ Gardy Loo Pismire / Leave a comment

This morning I had a long overdue coffee date with a wonderful woman. We are about the same age and are both on the road of discovery about ourselves while deciding what we want the second half of our lives to look like. We have a lot in common in many regards and I hope she is on the way to becoming a good friend.

After coffee was over it occurred to me how much I miss having close female friends. Sometimes I miss it so much it feels like a piece of me has been ripped away and left abandoned out on an isolated road. Alone.

Don’t get me wrong I have some wonderful friends. But due to our constant moving or their moving; these women that I cherish and love are scattered throughout the United States. There is N… my been with me forever friend who has seen me through my youthful indiscretions and has nursed me through the past year. There is C who knew me as a teen and with whom I share a birthday. There is L who makes life something to laugh at and enjoy to the fullest even when I am whining like a baby. And there are several other special ladies who I know would be there for me if I picked up the phone. But what I need at this juncture of my life, and what I miss most, are a couple of good girlfriends to go to coffee with every Thursday to catch up on each others lives.

It is hard making friends at my age. It’s an art really. The type of art I have really never possessed in sufficient quantities… because I don’t do acquaintances. I do… “I’ll save your life if you’re in a raging river”… types of friends. I would do anything for them and they would do just about anything for me. These are the plunging off a cliff, Thelma and Louise, kinds of friends.  Frankly, there are not a lot of people I want to risk my life for or go down with at my age. But I am still willing to try to find those kinds of inspiring and fun people and offer them all that I have to give… which is quite a lot.

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There are other reasons I find making friends difficult. Sometimes when you have special needs children with challenges it makes it difficult to make friends. Most people have no clue of all the things you have to do to make your life work. They don’t understand when you have to cancel at the last-minute because of a major meltdown that is occurring ten minutes before you are supposed to meet. And being around others whose children also have challenges can be draining for both people because it seems as if too often you are both drowning at once and just holding on by the thinnest of branches. While things have improved in my household sometimes I feel like past behaviors hold me back because I am unsure when those issues will rear their ugly heads again. It makes me afraid to risk “those” looks and “those” whispers from someone I thought was special only to find that they really aren’t. Sometimes I wonder if that isn’t how my sons with autism feel.

There is also the issue that most women’s lives are so full that they barely have time for the friends they currently have much less making time for someone new in their lives. With old friends you know what you have and how to relate. Most people just don’t have the energy to figure out the quirks of a stranger. And I get all of this. I truly do. But damn, it just means that so many of us are missing out on something that is so good.

But really, I don’t want a lot of friends. I just want a small group of coffee klatching Thursday morning women to hang with. Some 40-60 something gals who won’t try to convert me. Won’t try to change me. And will love me despite all my idiosyncracies.

With all the lonely people out there you would think it wouldn’t be that hard to find but it is. Which makes me thankful for all that I do have in my life. Yet, I am greedy and I want more. Much, much more.

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On Giving Love When You Have None Left To Give

/ Gardy Loo Pismire / Leave a comment

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Sometimes my house is pure 100% chaos. Sometimes it is as quiet as a lamb. Most of the time it is somewhere in between. But then there THOSE TIMES; the times when Andre digs in and NOTHING I can do will change the trajectory that we are about to embark on.

Change for Andre is difficult. It often is for those on the autistic spectrum. Sometimes that change is as small as using grape jelly as opposed to strawberry on Andre’s PB&J. But more often it is something along the lines of telling him to do his chore.

“Andre you need to empty the dishwasher!” (for the third time)

“I dun’t want to”

“There are lots of things I don’t want to do either but they must be done so empty the dishwasher. NOW”

“I dun’t want to”

This I dun’t want to would go on 100 times if I permitted it. Usually at this point the conversation will escalate to one more warning. Then I head upstairs (with him trying to stop me…pulling on me or poking at me) and take all of his electronics and tell him that he can have them back when his chore is done.  This is followed by ten minutes of attempted manipulation, threats (I’ll put your phone in the sink if you don’t give me back  my stuff) and flat out increased defiance. Finally, Andre will realize that he has gone too far and then resorts to such things as:

“Tell me you love me mom”

“I need love. Give me a hug NOW.”

I want a kiss NOW”

Along with all the demands he begins hanging all over me DEMANDING a hug or a kiss by clawing at me.

Of course, by this time I am worn out and tired of the CRAP. I try to remember where this is coming from inside his head (fear of abandonment/fear of being unlovable/anxiety) and react accordingly. But there are times when giving him what he needs (a hug) feels so ugly and disingenuous after all the chaos and manipulation that I find it hard to wrap my arms around him. I find it hard to find a place in my heart to grant him the grace that he needs. Most of the time I manage to dig it up from G** knows where but there are times it is almost impossible to find and it is at those moments when I feel like I have been swallowed whole, the best parts of me ripped out and flung far and wide. It is at these times when I start crucifying myself for not being able to give my son what he needs because it is such a little thing that feels so big.

Luckily, most of the time I do not get to this place of self torture because as I start to fall down the rabbit hole; I get ensnarled in the tree roots and find a foot hold to make my way up again. But there are times that I would like to keep falling down that rabbit hole just to feel the impact upon landing. To feel the brokenness that results. And when that happens it makes me realize that is probably what Andre is feeling (the impact) and then I find I can go over and give him that hug. A hug that will ultimately mend us both. A hug that that tells him that I love him and he loves me and that we are in this thing called autism together. Forever.

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“Perfect” Words

/ Gardy Loo Pismire / 10 Comments

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I have been working hard to use the “perfect” words and phrases in my everyday interactions in order to minimize conflict and optimize understanding. Our therapists say to try to increase our usage of them everyday. Here they are:

  1. I love it when______
  2. Help me understand
  3. What would make it easier for you?
  4. I just got triggered and I feel ______
  5. Can I have a re-do? (Meaning you screwed up and would like to try again)
  6. I am not comfortable with______. Perhaps we can try ______ instead. How do you feel about that?
  7. I have a concern about_____
  8. I heard you say _____ and I am wondering what you mean by that.
  9. I am trying to understand please tell me more.

 

I have to say some of them work better than others. It seems like the “I like it when…” phrase often brings about the desired results and by saying “What would make it easier for you?” I get to know exactly what would be the most beneficial thing I could for B at that moment in time.

Last night I tried the “I have a concern about…” and it bombed…BIG TIME. Not only did  I feel like my words had exploded in my face and I had been cut by shrapnel; I ended up feeling like a fire work that just wanted to explode…light the fuse…I dare you. Let me explain.

The kids started school two weeks ago and it has been absolute chaos. Between each kid being at a different school,  two carpools, and one kid also taking a college class in addition to normal high school work; the hectic threshold has increased 20 fold in his house. Already I have gotten two phone calls and two emails from Andre’s school, one from Gracie’s and have had to contact Paul’s school three times for various things in addition to talking to the counselor. Add to that book marking each kids classes(12 total) so we can check on homework every night finding/loading emails for teachers and two IEP teams…well let’s just say that it has been a challenge.

So last night when I got home late after being voted in as secretary of a school organization (more about that some other time) I found B watching the Olympics which then proceeded to his playing of the bagpipes. Meanwhile, I went upstairs to ensure that Andre was doing his homework and spent 30 minutes going through all his class websites with him after getting a call from school earlier in the day. I spent another 20 minutes re-organizing his notebooks for what I hope is greater understanding of where papers/homework are and where handouts should go. I did the same  last night with Paul who seems to not be getting any homework… hmmm. Had to check on that too.

As I climbed into bed, after thinking long and hard about how I wanted to approach the issue, I said to B:

“I have a concern about ______ (“using “perfect” word phrase) how we are going to get the boys through school this year.(Two boys who have autism and face many challenges when in school) So far I have received several emails and phone calls from the schools and since the boys are both in high school now, where even more is expected of them; I think we need to come up with a plan on how we are going to handle this because I can’t do it all. If you have any ideas about this I would be glad to hear them. This is what I was thinking. I was thinking that perhaps I could be responsible for Andre and checking his classes and that you could do the same for Paul. If there was math homework that help was needed on you could do that (I don’t do math) and English would be my responsibility. What do you think? Or do you have something else in mind?”

“I work from 7 am to 6 pm. I can’t do it.”

CANCEL CANCEL CANCEL  (To find out what this means ) Read Sitting In the Silence

“Well, honey, I work too. I drive two carpools, answer calls and emails from the school, pay bills, clean house. I work too. I’m sorry, you don’t get to just hang up all the responsibilities of this household when you walk in the door.”

And so it went.

Later I told him, “You know I worked very hard thinking about how to say what needed to be said in a way that was non-confrontational using the words/phrases our therapists taught us and I feel like you just shot me down. I am very disappointed about how this went.”

“You are entitled to your feelings. Feelings are neither right nor wrong,” which is B’s new catch phrase.

Yeah, well, buddy… my feelings are now ones of being pissed and angry at your feelings of entitlement and your lack of sensitivity that I am trying my best to have a calm discussion with you to get what we both want/need for our boys. I am also thinking that if we had divorced you would be getting half of these calls, doing half these carpools and that you would need to hire and pay for wife that you now have for free. An expensive proposition to say the least. Frankly, I would like to kick you in the ass for being such a blockhead.

And so I went downstairs and listened to THREE meditation podcasts in an effort to bring myself back down to earth and re-locate my place of serenity. Afterwards, as I reflected on the day I wondered it there really is such a thing as “perfect words.”

I guess the answer is no…but I will keep trying to use them anyway.

And now I will:

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Sparkle

/ Gardy Loo Pismire / 4 Comments

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Several months ago I wrote about the chandelier that has been sitting in my garage for the past year.  You can read about it here Assigning Meaning To Things

The fact that B knew the emotional significance to me about having this hung and it never was done still stings a little but for the most part I have let it go. He is busy. We are busy and he hates doing electrical. I am giving him the benefit of the doubt that not hanging the chandelier is not an indication as to the depth of his love for me or how he feels about our relationship. It is all I can do.

All this week B has been up at Boy Scout Camp with the boys. He takes a week off of work every year to make sure that they have that experience. It is hot. It is dusty and he has to work very hard to make sure that Andre’s autism does not get in the way of him having fun and building memories. It is a fun week but an emotionally tough one too. Sleeping on cots in tents is no longer my idea of fun so I am grateful that he does this because he loves our kids and wants them to experience all that they can.

While B has been gone this week, I decided to make myself happy. I decided to take a chance on the goodness I see in our relationship and where I think it is headed. So I called out an electrician and…HAD THE DAMN CHANDELIER HUNG!. It looks beautiful. It is shiny and looks perfect in the room. And it makes me happy which is the best reason of all to have hung it. IMG_9903

So there you go…happiness in a box; happiness within me.  May it inspire me to sparkle and shine everyday as it does. For it no longer matters to me who put it up; I am just happy that it is there.

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372 DAYS TO FIX THIS

/ Gardy Loo Pismire / 16 Comments

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When I began this blog it was with the intention of blogging everyday for 365 days as I fought to keep my marriage intact. I didn’t because life got in the way. A lot. Life has a tendency to do that when you have a husband, 5 children, a dog and 3 grandchildren.

I purposely decided not to blog about reaching 365 days on the one year anniversary of B telling me how unhappy he was in our marriage and that he might want a divorce. I didn’t want to “celebrate” much less acknowledge one of the most agonizing days of my life. That day, one year ago, was a full of intense pain, enough tears to officially end the drought and it lead to months of increased struggle, anger, and hurt. The “I Think I Might Want A Divorce Day” brought me to my knees and my life changed at that instant. Thirty years of togetherness, memories, marriage and great sex were on the verge of disappearing in a blink of an eye. I am not sure why but on that day I asked B to give it 365 days to fix our broken relationship and with it a blog was born. Six hours later he left for a week to take the boys to scout camp.

Frankly, it was never my intention to spill my guts the way I have; nor allow my anger and dismay to swallow me whole with witnesses along to pick their way through my mess. But I did and it did. I am not really sure what I expected when I started writing but the rawness of some of my early posts bring me back down to earth with a thud. Divorce was for other people. Not me. Damn it.

There are many things that have happened this year that have stretched and surprised me. The major one was that at some point in the past year B and I reversed roles and I decided I wanted a divorce but to my surprise he didn’t. That was an awakening and hurt almost as much as when he said he might want one. Frankly, I didn’t know quite what to do with that. But we both know that with three kids in the house, two of them with autism and other issues that impact our marriage in a big way; that divorce would be akin to picking up tiny pieces of a huge pane of shattered glass and that someone would get cut. Deeply.

I wish I could say I handled all of this with grace. I didn’t. I did however get a therapist whose help has been invaluable. She has taught me to be mindful. To sit with things and let them brew without my influence. We have also been going to joint counseling and B now has his own counselor too so that he can learn to express himself rather than keep things bottled up inside for years.  But the best thing we did was attend a Marriage Encounter weekend. It is what has started us down the path towards healing, understanding and really listening to one another. I am not sure that had we not attended that my blog would count off 372 days. Really, it made that big of a difference. We just had to be open to it even though we are not Catholic and the things were heard were nothing more than what we would have heard at any religious gathering. I urge any of you who are struggling in your marriage to at least consider attending.

The changes I have made over this past year have been accomplished through a lot of hard work and perseverance . At times I have taken one step forward and two steps back. Those steps have been humbling, courageous, and have often felt like I had a huge splinter in my shoe while I was taking them. I have had to do a lot of changing. I used to try and live my life with a guarantee arm-wrestled from others…an impossible task. I try not to do that anymore. The biggest thing I have accomplished to date is that I have stopped yelling. That was a major victory and has changed our family for the better in so many ways. I am now working on trying to remove a sense of harshness from my voice and it is a challenge to say the least.

I have implemented many new ways of doing things and new ways of considering how to occupy my place in the world. This is what I have done that has been helpful for me:

  1. I listen to the Meditation Minis podcast by Chel Hamilton. It’s free and it is only 10 minutes a day. Those 10 minutes have allowed me to decrease the negativity I has feeling in my body and mind and replace it with acceptance and positivity.
  2. Thanks to my therapist I now have a Place Of Mysteries. This is a place in which I put on a shelf things I do not have enough information about so I do not carry them around with me. I then examine them when I have more facts so that I can make intelligent decisions.
  3. I am working really hard on not saying things the moment I think them. I now try to let my thoughts gels before spouting them.
  4. I try to look for the good instead of the negative
  5. I make a conscious choice all day long to CHOOSE LOVE. When things irritate me I CHOOSE LOVE and try to act accordingly.
  6. I try to give the benefit of the doubt to the positive attributes I know that B has instead of jumping to conclusions.
  7. I try not to TIME TRAVEL to the future and the past. Instead, I try to stay in the present collecting the golden nuggets of life that are in the here and now.
  8. I try to think rather than just react and ask for time to do so when more time is needed.
  9. I get more sleep realizing that there is always tomorrow to get things done.
  10. I keep a sex calendar which serves as a gentle reminder that too much time has slipped away since our last loving encounter.
  11. I work on being mindful of what is going on around me and within me. I have slowed down to really think about the ramifications and unintended consequences of what I am doing.
  12. We dialogue every night in the way we learned to do at Marriage Encounter. This has allowed us both to learn more about what the other is feeling and gives us a loving perspective in which to view our mate and his/her actions. Dialoging gives us the time to ask questions and clarify, not just assume what is meant by words/actions.
  13. I have lost weight but not for him. It is for me only and it shows.
  14. I am learning to just sit with things and not try to force a desired outcome.
  15. I am trying to learn to do things with joy in my heart while doing them. After all, the house does need to be cleaned so why not do it with joy instead of resentment?
  16. We try to have a date night every week or so. Time spent with each other without the interruptions of family life has allowed us to look at each other as individuals with unique feelings instead of as just Mom and Dad.
  17. We have a GRATEFUL log that we keep to remind us of all the wonderful things the other has done for us and is useful to pick-up and read when things are a little bit off.
  18. Whenever I feel like I am getting “hooked” I try to take a pause and relax.
  19. I have come to realize that life is not static. We are fluid beings and as such things will change. I don’t have to stay “stuck” in a particular way of acting or doing things especially when it is causing me or my loved ones harm. I am sowing seeds everyday that will blossom as suffering or joy depending on how I plant them and care for them. I try to keep this in mind as I interact with others.

So a year as come and gone. A year in which I did not get divorced or separated although we came close. A year in which we both worked hard to improve ourselves and our marriage. It has been a lonely year that has been frightening yet also enlightening. We have had to expose our own vulnerabilities as we have attempted to open up to one another in very deep and personal ways. And as painful as it has been I am grateful for it because I have become a better person, a better partner, and a better mother because of it. I have grown and become a better me. A person I am proud of and a person who is more comfortable in her own skin. And I have a marriage that is better than I believed would ever be possible. Does this mean that in 365 days I was able to “fix this”? Heck no. Does this mean I have a perfect relationship? No. Does this mean we will be together forever? I think the opportunity for that has increased tremendously but I no longer try to look for guarantees because there really are none for this type of thing.

What I do know for sure is that once again B is at camp for the week and this time when he left my heart was filled and my brain was quite. For this time around, I have a confidence in myself  and a belief that together we can conquer those things that are holding us back. Things may not be perfect but they are getting better everyday and that is really all you can hope/work for. But perhaps the most important thing is that I am happy, really happy, and sometimes even joyful. I am becoming who I want to be as I enter into my mid 50’s and discover what it is that is really important to me and what I can leave behind.

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So thank you for sharing this journey with me. I am sure there have been times you have wanted to kick me in the ass. I am sure there are times where you would have liked to have screamed “WAKE UP.”  But believe me I have felt your loving arms wrap around me and hold me close when there was no one around to do so. And for that I will be eternally grateful!

 

Drivers Ed

/ Gardy Loo Pismire / 1 Comment

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It’s early in the morning and Paul is sitting at the table with me, sleep still nestled deep in his dark brown eyes. He is studying for his drivers education test and as I look at the almost 6 ft boy sitting in front of me, I ask myself, where did the time go?

When I first saw the boy in the yellow hat, I knew sure as anything else I had ever known, that he was destined to be in our family. In probably the fastest Korean adoption ever, we were on a plane bound for Seoul within 5 months of turning in our paperwork. It was if the universe knew he needed to be settled.

When we saw him at his foster mother’s house he was a chubby thick-boned sturdy 10 month-old already walking faster than the speed of light. The boy was quick and moved like a prize fighter, bobbing and weaving the entire day. Throughout the apartment the drawers were taped shut an indication of the whirlwind that was to enter our lives.

The day we brought him home, he toddled over to his 7-month-older brother, and swiftly knocked him to the floor. Thus a dynamic was put into place in which whatever Andre had, Paul wanted. It’s a pattern that remains to this day.That first day home I told B, “Mark my words there is something different about this kid.” And there was.

We soon noticed that parenting was harder this time around. First came the tantrums the likes of which I had never seen before. They were like HUGE thunderstorms…in your face, with screaming so ragged and loud that I was sure that eventually the police would arrive at our door. Often Paul would rage uncontrollably for an hours at a time. Obsessions with clocks, then water, then spoons developed which lasted for several weeks and then they were gone as if a magician waved his wand only to be replaced by another. Before the age of 2 we were already consulting with behavioral therapists in an attempt to change the path we were on. It wasn’t until Paul was 5-years-old that we got the autism diagnosis, the Tourette’s Syndrome pronouncement came when he was 7-years-old and the Central Auditory Processing Disorder diagnosis a year after that. Then for two years we had ABA therapists in our home 5 days a week working with both Paul and Andre to help alleviate the most pressing challenges that autism wrought between the two of them. Between weekly hippo therapy workouts, psychologist appointments and daily hour-long neuro reorganization exercises, we barely breathed for 4 or 5 years and when we did it was ragged, coming is fitful spasms, like a marathon runner as he crosses the finish line. Sometimes we were broken and worn only making it through the day because we were on autopilot.

But then, miraculously, things started slowly changing. Fewer tantrums occurred. Less resistance. More control. More sense of responsibility. A new willingness to help out and think of others feelings. Slowly all the years of hard work began to slip into place finally resting where they needed to be and Paul began to mature.

Those younger years were often dark. They were sad. They were scary and they were the most difficult of my life but today I have come out on the other side with a newfound appreciation of my two sons, knowing first-hand all the hard work they have had to put into themselves in order to become the wonderful and engaging people that they are.

These days when I see other parents on the on-line bulletin boards struggling with their children; I try to encourage them and assure them that it does get easier as their kids mature. And when I see their pain and fear sometimes it takes me back to mine. When this happens I involuntarily shudder but then marvel at all that our entire family has accomplished together through hard work, fighting the system, and never giving in/up.

This morning I sit at the table watching as Paul studies for his drivers ed test and I wonder…where did the time go?

 

 

 

 

Hatred Has No Place In Politics

/ Gardy Loo Pismire / 3 Comments

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*I usually don’t do political commentary but today I felt I have to as the primary for my state is this Tuesday. If you don’t like it don’t read it.*

There are many times in my life that I have struggled with religion. In fact, when picking a church I have been known to call and interview the pastor about issues such as homosexuality in their church, Christians practicing hatred, and women’s rights. Inevitably, I would get a “Well, we tell people that homosexuality is a sin so we do not marry THEM in our church” to which I would reply that any church that teaches exclusion based on gender, race, ethnicity and sexual identification goes against the teachings of Jesus. I would thank them for their time, scratch them off the list, and then try another.

As a person who has children who are “minority” citizens of this country I have always had a concern about people who hate. Whether its Mexicans, homosexuals, or uppity women; haters don’t just hate one group they are equal opportunity haters against anyone who is “different” from them. I don’t tolerate it but I am surprised by the numbers that do. While this week it may be gays that are the new target group, next week it will be African Americans who experience more than the usual amount of racism that they have to deal with on a daily basis. Somehow, it always feels like we as a country are just a step away from my children being the next group that haters will descend on. This is why Donald Trump is such a concern to me.

The President of the United States is “suppose ” to represent and look out for the interests of all persons regardless of who they are and where they come from. But this week Trump sunk to a new low stating that the  judge who is presiding over his case should be removed only for the fact that he is Mexican American. But it is not the first time The Donald’s bigotry has risen to the forefront. During his campaign he has called Mexican immigrants rapists and murderers. In 1973 and 1976 the Justice Department sued Trump’s company for not providing equal opportunity to African Americans who were trying to rent apartments. He has also proposed a blanket ban on Muslims entering this country. His casino in Atlantic City was fined for removing black card dealers from the floor when a certain high roller arrived because the gambler did not want to be around black people. There are so many instances of Trump’s racist ideas and comments going back decades that it truly amazes me that anyone is surprised when a new attack against some group is uttered by the man.

As a parent I have an obligation to protect the rights of my Asian children. As a human being I have the same obligation to promote the rights of all of my fellow beings on with earth. I might even argue that as a person whose ethnicity has been provided the greatest protections and has been given greater opportunities; my duty is to ensure that those who have not had those chances should be entitled to rights equal to or greater than my own. So when I see a man who promotes hatred, bigotry and racism trying to ascend to the presidency I get uneasy. I get uneasy for my children, for my family, for people of color and those whose religion is different from my own.  I get uneasy because it seems incredible to me that we as a species have still not realized that hatred begets hatred and while you are now “safe” there is no guarantee that you always will be. And having visited an extermination camp, I have seen first-hand what the end results of hatred can be.

A leader who promotes hate of any sort is not a person who will bring unity to a country so torn by diametrically opposed ideas. Unity is what we need in a country as vast and diverse as ours and Trump will not bring it. So if you are thinking about voting for Trump I urge you to think about my children and all the children whose differences may make them vulnerable to attack because the Republican nominee is promoting an agenda which makes being “different” from the white establishment undesirable and if history is to be believed will end up limiting their opportunities. So it is time to take a stand against hatred by using your vote to show that you will not accept a candidate whose platform is mirrored in hate. I thank you as do the millions of families who will be negatively effected by a Trump presidency.

 

 

The Eagle Is About To Soar

/ Gardy Loo Pismire / 1 Comment

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Yesterday my boys, Andre and Paul, received their Life rank in Boy Scouts. It is an amazing feat especially when one factors in all their challenges. Next up: Eagle Scout the final and highest rank. They are already busy deciding what their project will be. It has to be something that benefits the community. They have to plan it, fundraise for it, and organize volunteers to help complete it.

I have to admit I have been a lousy Scout mom. With all the other things I have done in the past or am doing I have rarely attended meetings and only occasional events. It is B who has done on a million hikes and campouts, attended every meeting, flipped pancakes for fundraisers, helped them earn merit badges and has taken a week off of work to make sure that the boys attended Boy Scout Camp. Without B, there would be no Eagles in the making. He has been there for years helping the boys to learn new skills and helping Andre when he falters. I am so proud of all of them.

As I watched Andre yesterday, his autism in full gear for whatever reason, walking in circles and shaking his head; I know that I have the Boy Scouts to thank for all he has accomplished. For all that both boys have. And while I have not always agreed with the policies put forth by the organization, I know that my kids have mastered skills that will benefit them in the future and may well save a life one day. In fact, Andre did earn a rarely given award, the Honor Medal, for saving a life.

So as they enter the final frontier of Scouting I want to congratulate my boys and thank all the adults who have mentored them and pushed them through. All those volunteers who have made Scouting fun and exciting. Because it is a joint effort by all involved and everyone involved are responsible for the fact that our soon-to-be Eagles are about to soar.

 

 

Holes… Or When I Am Gone

/ Gardy Loo Pismire / 2 Comments

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Me: I am going to miss you when I am gone (B and I are going to SLC this weekend)

Andre: I’ll miss you too

Me: Why will you miss me

Andre: You do my laundry, you cook for me, You make my lunch

Me: Is the only reason you’ll miss me is because of all the things I do for you

Andre: Well, to be honest it helps
Me: So what are you going to do when I am not able to do those things for you
Andre: Well, I guess I will get married

 

I love my son. Truly I do. But because of his autism everything to him is from a “what are you going to do for me” perspective and very rarely a “what can I do for you” thought even occurs to him. The one daily chore he is expected to do is often a battlefield and it doesn’t matter to him that everyone else is doing their part. This lack of reciprocal interaction or loving behavior on his part often makes me feel hollow inside.

With most children you have some sort of back and forth relationship. A relationship in which the child wants to please the adult in their life and vice versa. Usually it’s a fairly balanced equation. We get something and we give something back. Even if that something is just a touch or a smile. That just isn’t really important to Andre. He spends more time figuring out how to get his way at all costs than ever considering the fact that sometimes people need a hug or a kind word to keep them going. This “I give to you and you give to me” thought process never occurs to him and sometimes it gets very old. Sometimes it feels like I am doing all the giving and getting little to nothing in return. When this happens it feels like a day spent outdoors in the hot sun just digging hole after hole after hole.

For me, this is one of the hardest parts about autism; this “I don’t give a shit about anyone else but me” thought process. Give me a monster tantrum anytime. Give me nonsense talk too. Give me the messy room, the sneaking food upstairs and the snarky comments. I can take all those and more. But sometimes what I long for is just a genuine back and forth dialogue lasting over 5 minutes followed by an Andre initiated hug at the end of our time together.

If I could change how autism looks in regards to my son this is what I would change. And who knows maybe this will click into place for him someday. Until then, I will sit here and wait knowing in my heart of hearts that even though he rarely shows it that my son really does love me. For that is all I have to sustain me at the present time.