The “Good Enough” Parent vs. The “Golden Ladder” Parent

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I’m a loser parent. In an age when parents rush to get their children in the most prestigious pre-schools, spend a fortunate on multiple language, music and sports lessons, and attempt fill their children’s social calendars with more dates than the CEO’s of major corporations; I am happy to report that I am not one of these “Golden Ladder” parents. I strive not for excellence but to be just a “Good Enough” parent.

Unfortunately or fortunately, depending on your views; my kids do not have a “Golden Ladder” parent. I am not the type that believes that each rung that their child climbs has to be new, exciting, educational, worthwhile, and play some important role in getting their child where they want them to be in 20 years. For these parents each lesson and each task must have some sort of fundamental purpose that will serve their child well in their future life and help them score in the top 1% on the ACT. Everything their darling tries is of earth-shattering importance and each rung of the ladder must be comprised of something meaningful to give their child the competitive edge that they will need when they attend a prestigious Ivy league school. They think their children must attain perfection and be model citizens as they climb their way to the very top rung where the golden ring awaits.

The trouble with all this expectation on a child is someday the “Golden Ladder” kids will fail and both they and their parents will not know how to handle it when they do. I met one of these “Golden Ladder” parents a couple of years ago in the doctors office. At that time our autism behaviors with both boys were in full swing (read LOUD) and this “gentleman” proceeded to lecture me on my children’s behaviors while pointing out how quiet, still and properly behaved his three sons were. Meanwhile the nurses slowly nudged open the reception window to hear this blowhard’s comments. They quickly called my family back apologizing for the lout who probably never would have had the nerve to say to my husband what he said to me but felt he had the right to berate a woman to make himself feel powerful and get his rocks off.

I went home and I was feeling like crap.I was tired of trying my best but not measuring up to the “Golden Ladder” parents standards. But what this man didn’t understand is that what he could show his child once and have a successful follow through; I have to show my boys 200 times each. In a day sometimes. That is autism for you. Parents with autistic children also have to work 100 times harder day in and day out than parents whose children are neuro-typical dealing with such things as food issues, anxieties and toilet training problems. Many of us have autistic children with insomnia which means we inherit the condition via osmosis so we are perpetually exhausted. In fact, many parents suffer from PTSD disorder due to the high alert status we contend with every day. Being a parent to a special needs child is not for sissies.

Having raised three successful and wonderful children to adulthood I wished I had just turned around and said to that idiot “I hope you are right about your kids. Unfortunately, you will learn someday that they have their own voice, their own dreams and their own ideas which more than likely will not be in step with yours. So before you lecture anyone else about their kids I suggest you wait until yours are grown and then we will talk. Because what I have learned from having all my children is that we all have expectations and sometimes they must be dialed up and down accordingly. Don’t make the mistake of forcing YOUR will and desires on your kid.  For if you expect your child to constantly achieve “the highest/be the best/” then you are setting them up to cheat in order to make you happy and achieve your expectations. And if you stress constant achievement and teach them that being the best is all they should strive for, then most-likely they will not learn to be content.”

That is what I wished I had said. Instead, I whispered in his ear that he was an horse’s ass because I knew if I said it out loud ass would become my son’s new favorite word. To everyone.

One of the best things I have learned from having two boys with autism is that climbing the “Golden Ladder” is not what is important. What is important, autism or not, is being able to encourage your child without being vested in the outcome and to let them have room just to be themselves. And knowing that sometimes their actions will make your cringe. But do it anyway. But perhaps the most important thing I have come to understand is that by laying the ladder flat and just putting one foot in front of the other, that is more than good enough and it is just what they need. Even if your child does their walking on their tippy-toes.

Growing Pains…293 Days To Fix This

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B is away on business for the week. While away, he had dinner with an old college friend and he told K that we had been having marital problems. When he told me this I reacted in a way that surprised me…I was crushed. I wasn’t upset that B talked with her for we all need someone to talk to and to help us gain a different perspective. In addition, we all need someone to just listen when the tides of life are out so far it seems they will never surge to shore. And even though I understood his need to discuss recent events I was still disturbed.

What bothered me about this entire situation was something simple and honest. It is this… Just how long are we going to continue to define our relationship by the worst point in our lives together? How long are we going to continue to act as if our marriage is on terribly shaky ground?  How long will this rough patch be our main identifier of all the things we have accomplished/survived/created over the past 29 years?

This is not to say that we still don’t have important issues that we are trying to resolve. This does not mean that we don’t have some distance to travel to make our way back to one another. And this certainly doesn’t mean that there still isn’t a chance that things will not work out the way we have planned. But we are moving forward with honorable intentions and the belief that we can make this work. Because it has become apparent through therapy that being separated from one another would bring much greater agony and suffering to each of us then any of the pain we have endured in the past three months, let alone twenty-nine years.

Thinking about all this after B’s conversation got me contemplating our marriage and our family. We’ve had six children and have watched them grow up and some grow out of the house. And upon reflection, I realized that marriages are much like children reaching puberty and going through those horrible and painful growth spurts. In fact, much like teen-age growth pains, for the past year or two our relationship has hurt and ached. It had stagnated and was no longer thriving. Then finally new growth has occurred and we’ve growth taller together and flourished. This growth spurt has stung, ached and produced much anguish but now we are growing in the same direction at the same time and I want to preserve this sense of wonder and repair. I also want to act in a restorative manner and take a protective stance in regards to the many incredible things we had done to make this relationship not just survive but blossom.

One of these ways is acknowledging that we have come a long way in 29 years:

  • We put ourselves through college without debt
  • We have moved 15 times as B advanced in his career
  • We survived serious and hurtful family issues
  • We went through IVF four times in our attempt to become parents
  • We have three home-grown children and adopted three more
  • We’ve had three of our parents die
  • We have two boys with autism which has stretched our relationship almost to the breaking point, not because of them but because of all the extra expenditure of effort to get them what they deserve
  • I’ve had numerous surgeries, one kidney donation, and the intense pain of fibromyalgia
  • We have had issues that easily would have torn others apart
  • We have had job loss and loss of a potential business that we adored
  • We have excelled at what we have created in both work and play

And yet we have survived. Sometimes even thrived. And in that miracle I no longer want to feel concerned, scared or hurt by my worries about my marriage. I want to rejoice in it and the man whom has made it a mostly incredible, exciting and truly meaningful relationship for almost three decades.

So there. I’m done. And in trying to restore all that is good about this life that I share with a man who I love, I am thinking about changing the name of this blog. Maybe it will be myhusbandwantedadivorceovermydeadbody, or Are You Kidding Me? or maybe just ?.

Whatever I decide, I know the change will be for the positive…just like those growing pains that have improved my marriage and my life.

Happy Birthday

Yesterday Andre turned 15. It hasn’t been the easiest journey getting him there.

Autism sucks. The endless meltdowns, constant push backs and never-ending trips to the schools. Countless hours of driving back and forth for therapy: hippo, occupational, psychotherapy just to name a few. The still unresolved issues of cleaning up after himself and throwing wrappers wherever they land. And the inability to consider other people’s interests and emotional needs instead of his constant “ME, ME, ME” thinking can leave me discouraged and exhausted.

Putting Andre on numerous drugs to control tics, anxiety, and severe ADHD wasn’t on my radar. I hate using these medications the combination of which can cause side effects that go bump in the night. And the cost, even with insurance, is astronomical. But managing him is easier with them than without and he doesn’t like how he feels naked and exposed when he forgets to take his meds.

Having two boys with autism has put our marriage under stress and considering divorceimages-5. Disagreements over how to approach IEPs, how to get Andre to comply, where we should be putting out money in our never ending quest to get the boys the skills they need to navigate life. Being totally exhausted hasn’t done wonders for our time together, especially in the bedroom.

I have been at my best and at my absolute worst because of autism. I have fought harder than I ever imagined I could trying to get services. I have loved fiercer than I ever thought I knew how. I did mundane tasks repeatedly in hopes that Andre would “get it.” I have also yelled louder, gotten angrier than I ever thought I was capable, and said a few words I desperately wish I could take back. Autism has at times brought out the Jekyll and Hyde in me and taught me things about myself I desperately wish I did not know. And PTSD-like symptoms still linger when I hear prolonged screaming.

But to his credit. Andre works harder than any one I know just to survive in the world. He fights anxiety, he has severe insomnia, bright lights bother him while loud noises used to do him in. Socially, he lives in a very isolated place. He wants friends but doesn’t know how to act so that people want to spend blocks of time with him.He is very close to beginning work on his Eagle Scout, he has saved the life of a elderly woman, and he carries amazing grades in school. He loves band, once memorized a 200 page book word for word, and he can name every dinosaur known to man including where they lived and during what period.

Recently, I asked Andre if he could take a pill so he would no longer have autism if he would do it. He replied, “No, because this is who I am and I like me.”

And even though this autism journey with Andre and Paul is not the one I signed up for (think European Cruise vs Survivor in the Outback); I also know that my boys are becoming young men who are an asset to the community and our family. They will make their way in life. It may not be the life I envisioned but both boys can and will make a life that they are happy with and can be proud of.

Yes, autism sucks but for some kids with this disorder there is a light at the end of the rainbow and in this past year its brightness has intensified and let us see the light where darkness once roamed. Autism sucks but it does not rule us.

Happy Birthday, Andre. You are deeply and dearly loved. I hope others will learn to accept and love you too.