Oxytocin TherapyFor People With Autism

images-1

Several years ago we asked our doctor about using oxytocin a/k/a the “LOVE Hormone” with our sons. At that time the doc said he wasn’t convinced regarding it’s effectiveness and wanted to see more studies. Well, start writing on the prescription pad, Doc, because the results are in.

According to a recent study released by the University of Sydney using one squirt of oxytocin in each nostril twice a day changes how children with autism approach the world and their relationships in it. Both parents and clinicians reported that children with autism were more socially responsive after beginning oxytocin therapy. Increased memory, eye gaze and emotion recognition were just a few of the benefits reported.

In case you haven’t noticed I am all in and the next time we visit our doc I am going to ask to give it a try. It couldn’t hurt and it may do a lot to change how our interactions occur.

 

One of the things I love about blogging

imgres

One of the things about blogging that I love is seeing all the people from different countries visit my site and I, in turn, visit theirs. It makes me happy to think that often we are all capable of understanding the emotions that the other person may be feeling even though we may live very different lives and that our shared humanity allows us to connect because we have “been there” before or faced something similar.

I have been fortunate to have traveled all over the globe. To date I have visited over 40 countries. That is because we travel cheap, go where the deals take us and we go in the off season. We also exchange houses when we travel.

The safest I ever felt at night was in Stockholm, Sweden. The happiest I have ever been was in Korea. The place I felt in awe was in the thermal baths in the ocean off the island of Kos. The place I felt the most connected to was Scotland and the place I wished I could stay longer was Ethiopia.

The number of people who have opened their homes and lives to us has been humbling. We have been invited into homes after a meeting during a meal in a restaurant and the next thing we know is we are on our way to something unexpected, special and always memorable. And what I really have learned from all this travel is that people just want to feel understood, appreciated and believe that they have been heard no matter where they live. And really 99% of the world wants the same things: peace, love, understanding, full bellies, reasonable heath care, clean water and hope for the future.

I like to think that all of us bloggers contribute in some small way to world peace and understanding. One can only hope!

images.jpg

YOU ARE THE JUDGE, JURY AND EXECUTIONER

imgres-1

This weekend I was on trial. YOU KNEW I have been having severe pain for weeks and was having it when the “incident” happened. You knew my cousin was visiting but you would not step in and control the boys when they were so out of control.  You did not step in to help but instead chose to sit in judgement me when I finally lost it. And I didn’t even yell. NOT ONCE. How dare you!

You say,” I don’t know if I can live with you because you yell too much”, so I quit.Now its, “I don’t know if I can live with you because you sound stern and mad and point your finger.” How would you like me to handle discipline in our home so our kids know that things are a serious matter? Smile sweetly and in a chirpy voice say, “Oh please, sweet boys stop what you are doing. I beg of you?” UGH.

I am NOT your mother. You are NOT my son. I am who I am. A person trying their best. Changing. Me Changing. Yet somehow it always seems as though I am the person in this relationship needing to be the one to change…what about you? Are you putting as much effort into those things I told you I would like to see you change? Let me answer that for you. NO you are not.

So let me in on a little secret. People get upset. Yeah I know you don’t like to because you want everyone to like you especially our kids. Our kids who know this is your weakness and exploit it. Our adult daughter who admits this and says it sucks for the adult but is grand for the child. Guess what, I have emotions that I show which make you uncomfortable because you don’t or won’t show yours because your mother punished you for it and you are afraid that will happen with me. No insist that it will/does so you use it as your excuse not to figure out who you are as an emotional being.  And yet you stand in judgement of me. And if I don’t do what you want, what you need, then you will leave. But surprise it might be me whose ass is hit by the door on the way out because I have to be who I am and frankly it ain’t so bad. Sure there are things that need refining. But at least I feel. At least I can say what it is I know as my truth, my faults, my goods and my bads.  I show those sides of me and no one has to spend their energy trying to guess what it is going on inside my head.

And surprise, here is one for you…often I can even understand why you feel the way you do. But just because I speak my truth in the way I do and you get flooded…that has nothing to do with me but with your relationship with your mother and I cannot deal with that because it is your issue that you do not want to have to look hard at.

And so I go to my therapist and we go to joint counseling but when are you going to go down deep and work on you? I’m trying to change for me, for us and for our family and to do so I am having to go to places I don’t want to examine but I do it because it needs to be done. When are you going to get brave and do that too? When are you going to really look at how your past is effecting our lives now and in the future?

 

The Shooting At The Regional Center Touches Too Close To Home

images

As I listen to the news about yet another mass shooting I wonder where did we go wrong? As individuals, as a society, as a nation and as citizens of the world? So much hate. So much misunderstanding. Too much religious influence. Too much disregard for others and ourselves. Too much interference in other nations foreign policy with its resulting unintended consequences.

My sons are served by the local Regional Center (RC) where we live. The RC serves individuals with autism, cerebral palsy, seizure disorders and mental retardation. They have allocated ABA services to my boys for several years and help with planning for their future. The people who work there are kind, loving and passionate people who work within the system to get their clients what they need so that they can live meaningful lives and reach their full potential. They are social workers, humanitarians and people trying to make a difference in this world. These are the kind of individuals who work at the RC…underpaid, overworked and empathetic in recognizing that disabled persons are often beat down by a society that ridicules those who are different. Most of all they try to give their clients and their families hope for their themselves and their loved ones with uncertain futures.

In the many years we have been served by the RC many of these case workers have become my friends as we spend time together trying to navigate a system in which the disabled have an unequal playing field where unemployment is rampant and the disabled are not seen nor heard. These RC workers often become of the voices for those who have little resources to take their concerns to the forefront of the political system.

Yesterday, I first became aware that something was not right with the RC when I received a phone call in the early afternoon. I picked up the phone to hear, “This is an emergency phone call. This is an emergency phone call. The Regional Centers will be open tomorrow.” Odd, I thought. Later I turned on the news and witnessed the carnage. I was horrified moreso than ever before, meaning ALL the unending shootings that have become a way of life for a country that in of itself is not suppose to be in a war zone.

So why did this particular act of violence have such an impact on me? Because I knew of these people. No, not the people who were murdered but I do know their co-workers in a different center and I shudder to think if it had been this RC instead. How, I wondered, would I explain this to my children had it happened here? How would I make them feel like the world was a safe place after walking through RC doors for so many years? How will the clients served by the Inland RC ever feel safe again in a world that already feels unsafe by many people who are autistic? How do you explain to a child that some people just view others as pawns in a game that is played with unwilling participants? How do you teach children to trust in a world in which just anyone can randomly shoot you in a restaurant, at work, on the soccer field, or at a concert; especially a child with autism who has already been bullied one time too often in his short life? How do you make them feel safe again?

The true answer is that you can’t because the shooters have taken away something that cannot be replaced with platitudes and pundit ideology…trust and the feeling of being safe. Yet, my kids have also learned that when bad happens that the response in the face of tragedy is the opposite. So while they saw sadness on the tv screen they also saw hugs, embraces, tears and people standing together to face adversity. But most of all they saw the love that fellow human beings can show one another and that defeats everything the terrorists stand for every single time.

 

 

 

Who Is The Turkey?

1531903364432765871

The gallant bird on Thanksgiving Day

Used to turn and strut and away

But then it was shot and left most bare

Naked in my kitchen lair

I put the turkey in to roast

As guests begin to drink and boast

Talk about me fills the air

As my in-laws berate me without a care

Their words like knives slicing away

Plunged deep inside this holiday

Soon I’m like that bird in there

Stuffed, pinched and plucked with nary a stare

And soon I begin to contemplate

Who is really for dinner this holiday feast?

And it appears the bird has suffered the least.

 

 

 

The Perfect Study

imgres-1

Several years ago I read a study that found that overweight women were consistently judged as younger than they actually were. In addition, and even more important, overweight women were rated younger than their skinny same-age counter parts. Seems that the fat in the face fills in those age fissures that often become as wide as the Grand Canyon when you reach my age.

This study was of interest to me because I am overweight. I am not obese but I have 40 pounds to lose to reach my optimum weight, improve my chances of avoiding knee replacement and probably prolong my life. Yet, as I read this study I realized there was a major flaw contained within it so I want a new study to be done. The perfect study. A study that every woman would pay good money for the results. And it is this:

I want to know exactly how much weight to lose to reach the perfect balance of enough fat to fill in those fine lines while still improving my health. At what point do those lines become caverns when the fat decreases. Is it 24.3 pounds? 18.2? 35.8? What is the optimum fat to filler ratio? Surely there is a way to measure this! I mean if you can invent Viagra certainly this should be a piece of cake. (Of course, we all know that the penis always has precedence over anything else known to man)

In this vein, my girlfriend contends that as women age they become either cows (fat, happy and always have something good to eat on the stove) or goats (skinny, carry carrots in a baggie along with a cup of double expresso at all times, and have a mmmmmmad and hungry look about them 24/7). Somehow, I think if I could learn this mathematical formula I could avoid both and look like a llama (perfect balance of fat to lean, great long distance spitter, soft and cuddly).

So all you scientists out there, I’ve just given you the perfect study that will make you a mint. At just a $1 a pop those huge students loans will be a thing of your past while this llama will be strutting her stuff in front of the pen.

Give Thanks

imgres

GIVE THANKS

For my sons

And for my daughters

For my man who is

My  best lover

And for my friends

Who have taught me about myself

Even those parts I delude myself into thinking

Are good for my soul

GIVE ME APPRECIATION FOR ALL I HAVE

 

GIVE THANKS

For all the people in the world

Trying to do their best

Suceeding with what they have been given

Never giving up

Never giving in

Putting one foot in front of the other

On a journey which is so different than my own

GIVE ME UNDERSTANDING AND EMPATHY

 

GIVE THANKS

For all I have been blessed by and with

And all I have had the opportunity to discover

May I never forget

Fatima’s mother and her daily struggle, her smile

Etched in my memory

GIVE HER MUCH NEEDED BLESSINGS

 

GIVE THANKS

I have a warm belly

No bombs dropping and  causing chaos and destruction

A life free from true suffering

That so many must led

Through no fault of their own

Lives shattered by policies

Not of their making

GIVE MUCH NEEDED WISDOM TO THOSE IN CHARGE

 

GIVE THANKS

For life-giving trees

For abundant fresh water

For those remaining polar bears fast disappearing

Due to man’s negligence

A earth that supports so many

In peril and under stress

Because of wants not needs

And our throw away culture

GIVE ALL HER CITIZENS INSIGHT TO DO BETTER BY HER

 

 

 

 

 

 

Relatives Unknown

Alexander McMullen copy

As a genealogist I find it interesting how we are a snippet of this and a snippet of that from so many of our past relatives. Having taken my DNA and put it on a database (let’s not go there about possible medical consequences…its a blind base) I am constantly finding new people who are in some way related to me. Today another distant cousin narrowed our shared ancestor down to a shared 7th G Grandfather who served in the Revolutionary War. And we each have a small part of him on chromosome 20.

My ancient DNA also surprises me…Siberia for example. And several other well-known ancients.

Recently, I put my children’s DNA into the data base. Because they are adopted they wanted to see if they could locate family and we have. While we will never know how they are related to the matches in the database we do now know of 4th cousins and such even though we will not know what side they come from. For those people who are adopted DNA genealogy is finally a way for them to connect with those who up to know would have been lost to them.

One of my adopted children who was born in Korea found out that he is also 2% Native American and 1% Polynesian. Where does this come from we wonder?  We can only assume it is ancient DNA carried by ancient people as they crossed over now extinct land bridges.

This holiday weekend was spent with my cousin. She brought another big box of family treasures with  her and I am once again scanning all these pictures unto Ancestry.com. A huge find was a tin-type picture of my GG Alexander McMullen. For me it is an amazing find as I had never seen a picture of him before and at this point our tree ends with him.That is him pictured above. He is said to be Scotch-Irish but where the Scotch comes in it seems like I will never know.

That is the beauty of genealogy. It’s a puzzle. And with the addition of one piece it can change the way the entire puzzle is viewed. It mirrors our lives both in looks and in how we perceive things and it is changing every day. That is why I love looking to the past because it influences the future of not only myself but my family as well.

 

Christmas This Year..Think Heifer International

Yeah, I know, this post is going to sound like one of those poor-oh-so-whiny and  spoiled American blogs and today that is what is truly is. I know. I get it. But today I will put myself out there and hang my head in shame if it gets just one of you over to the Heifer site to make a donation to this worthwhile organization. Thanks.

Christmas has become a fiasco in this house. Every year the pile of presents seems to get bigger while the actual needs get smaller. The holiday had become grand that no one can remember exactly what they received because there was just too much to process and catalog at one time.

I confess this is all my fault. Unlike my ex-brother-in-law who takes his kids shopping for a new toy every Friday (ugh); I am one of those parents who rarely buys something for my kids unless it is their birthday or Christmas. The rest of the year…forget it.  Yet, I have discovered that this parenting philosophy of mine also works to my disadvantage because I guilt myself into believing I have to make up for all those “NO’S” during the rest of the year and so at Christmas I am like Santa on steroids…disgusting…especially when there are so many children in the world just wanting to have a meal to fill their empty stomachs. Over the years my travels have pressed into my psyche the enormous needs throughout the world and in this country too.Buying toys or providing food…the seriousness of this weighs heavily on my mind during the holiday season and throughout the year. Really a child going hungry should not be happening anywhere in this day and age. But it does all too often and we all suffer because of it because who is to say what that child could have grown up to achieve? Perhaps they would have been the one to provide the missing “ingredient” to make sustainable cold fusion a reality? Or maybe they would have become a person who promotes unity and healing throughout the world? Maybe someone like Gandhi? Or maybe they would have practiced the art of a local healer whose ability to diagnose keeps her community alive? So much potential talent snuffed out and wasted due to weather, politics, poor infrastructure, greedy middlemen or assholes who intentionally starve their citizens while their pockets and bellies grow fat.

While I cannot change all the problems in the world I can change them in my little corner. So after much decision and debate this year we are trying something new. Each child will get four presents; one in each category: SOMETHING I WANT; SOMETHING I NEED, SOMETHING TO WEAR and SOMETHING TO READ. They will also pick out a animal to donate through Heifer International to a family whose life will be changed because they now have a way to sustain themselves and make money as their animals procreate and grow. And if you are interested you can contribute too. Visit Heifer International and learn more about this worthwhile charity. Or do something for your neighbors in need. Whatever we each do we will be making the change that we all want to see and that is the best gift we can give ourselves in a world gone mad.

http://www.heifer.org/

 

Dear Jennifer P

images-7

Dear Jennifer P:

I met you in the K-Mart today. Briefly…as you struggled with your son who was throwing what you thought was the MOTHER OF ALL TANTRUMS. It wasn’t. It only felt like it was but I immediately recognized what you were dealing with. Autism.

I remember those days. Two autistic boys in a cart pushing them through the store praying that we could make it out alive. Alive…meaning, no one had thrown themselves on the floor. No one had swooped their hands along the aisle knocking boxes off the shelves as we walked. Alive… meaning no one had yelled, screamed, and kicked me or anyone else who happened to have the misfortune of walking within 10 feet of us. Two autistic boys were were often like two atomic bombs waiting to go off undoubtedly when we were in public and most often in a crowded store.

Of course, I didn’t realize back then this would often happen because their sensory systems were out of whack when we entered the unfamiliar. That their fright/flight mode went into overdrive  outside of our house. That the florescent lights pushed them into a form of hyperactivity on steroids. That all the strange sounds and people moving about was just too much for them to take in. But even if I had understood all that…we…our family… still needed to live life. To shop. To get our tires changed. To visit the dentist. We still had lives to lead despite the challenges that autism inserted into our lives on a daily basis.

images-4

I remember the looks, Jennifer P. Those harsh judgements. The feelings of helplessness and being so alone. The exasperated facial expressions.  The “why don’t you get your kids under control” comments. I remember those oh-so-helpful strangers telling me how I could improve my parenting skills in the grocery store, in the bank, and at the doctors office. At one point it seemed like no matter where we went someone had something “helpful” to say. But more than not those “helpful” comments were really just plain intrusive and mean. People trying to feel superior about themselves. And at those times I wanted to shout out “I know what I am doing. I did raise two kids to adulthood and they are wonderful and successful human beings. So please don’t judge me nor my parenting!”

 

So when I saw you today with tears streaming down your face as you tried to quiet your son, my heart ached for you. My soul wept as your tears fell and you pled with your son to please calm down. As I walked by I told you with a smile plastered across my face, “You are doing a great job. Keep up the good work,” but I knew you didn’t believe me because I have been there and if someone would have told me that then, in those meltdown moments, I wouldn’t have believed them either.

So, Jennifer P, I want you to know that I know you are doing your best. I want you to know that I know that you work harder with your kids in one day than parents with neuro-typical kids do in a month. I want you to know that it won’t last forever and your boys will mature and those social skills will kick in one at a time. It will take a while but trust me they will get it. And beleive it or not someday you WILL seek their company when you visit the market.

Out in the parking lot I cried. I cried for me and all the times I didn’t handle my children as beautifully as you did today. I cried for every mother out there who has a challenging child whether he has autism or not. I cried for all those parents who are trying so dang hard in such difficult situations. And I cried for you and when I saw you leave the store with nothing in your basket my heart sank. You sacrificed your needs for the people in the store and for your son. That is why I drove over to you. That is why I wanted you to know that I saw how hard you were working with your son and that this was not a fail on your part but a win because you instilled something in your son that he needed at that moment in time. Sure it will take him a 100 more times to understand but eventually he will and when he does you can pat yourself on the back for being a great mom. Heck, you can pat yourself on the back right now for being that mom who never gives up and for being that tireless fighter who will continue to give your son what he needs to be the great person he will eventually become.  Don’t give up. And don’t give in to those who want to judge.

You were amazing, you will continue to be amazing and I will continue to support you and other mother’s like you from the sidelines. I only hope that others will grant you the grace and do the same especially as the holiday season arrives.

images-5