Families With Special Needs

Home Alone Horror

/ Gardy Loo Pismire / Leave a comment

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Home Alone is one of the most seen movies in the world. Although it was made years ago, you can always find it on one channel or another because it is a family favorite. It is funny and it makes you laugh out loud…unless it comes to roost in our own life. Then it ain’t so funny!

B and I were heading home from New York the other day after a wonderful weekend anniversary trip. Though we had been through two years of a “maybe” divorce, this weekend felt like we were in love again. That is when the sitter texted me.

I JUST LOOKED AT MY WORK SCHEDULE AND I HAVE TO WORK TONIGHT. I WILL NEED TO LEAVE AT 10 p.m.

“THAT IS FINE,” I texted back. “WE WILL BE HOME FROM THE AIRPORT AROUND 10:15 .SO IT ISN’T REALLY A PROBLEM”…until it was.

Standing in the crappy line with a GROUP 6 boarding ticket while annoying, is not a problem. Usually. Unless, you step on everyone’s toes and piss them off, while trying to maneuver yourself  back to the cockpit to get your suitcase checked because all the overhead bin space is taken. Placing your belongs in the overhead bin…no problem…for the GROUP 1-5 passengers. GROUP 6…FORGET IT! Fastening my seatbelt was easy as pie as my anti-anxiety “fear of flying” pill kicked in.  Everything was going as expected until these words were uttered by the cute and spunky stewardess whom everyone suddenly looked like they wanted to slap:

” PLEASE RETRIEVE YOUR BELONGINGS AS EVERYONE WILL NEED TO DEPLANE. THERE IS A PROBLEM WITH THE EMERGENCY SLIDE AND GROUND MAINTENANCE HAS TO BE CALLED TO FIX THE ISSUE.”

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Now I will confess I try to keep positive in these types of situations. I mean, after all, it is better to be riding on a “fixed” plane than a “broken” one. But an emergency slide? Really? I mean how often are they used anyway?. Hell, I thought, if there turns out to be an issue, I will gladly stand at the open slide-less door and just toss people out onto the ground below. Problem fixed. Now, let’s get this freaking show on the road!

A collective groan so loud it nearly popped the rivets holding the plane together ensued. This was followed by a sound reminiscent of a herd of lumbering and pissed-off elephants starting back up the gangway.

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Faces that had been smiling only 5 minutes previous were now pinched and drawn. The variety of cuss words I overheard was astounding and during the race to the customer service center several people nearly lost there lives. Frankly, there was not enough free alcohol in the entire terminal that could cheer up this downcast and angry crowd.

As B and I stood in the wrap-around line waiting to talk to that poor unlucky agent who had been plucked by the previous 50 ticket holders; it finally dawned on us that we had a problem. A serious one.  We only had an hour layover after we landed before we were to catch our final plane home. Unfortunately, this was the last plane for the night we were soon to discover.  Suddenly, were having our own HOME ALONE moment and nothing about it was the least bit entertaining.

Now being home alone is okay in our household during the day but certainly not overnight. We knew that Andre wouldn’t care as long as he could lay around in his underwear eating chips without being bothered by anyone. Change is hard for kids with autism but as long as there is food available and no one around to boss him around; Andre was happy.

Paul started crying over the telephone. The unknown is difficult for him but an unexpected change of plans is a catastrophe. . Let’s just say this didn’t fit into his scheme of things and the breakdown started.

Gracie…well, she isn’t one for being away from her Mommy and Daddy…especially at night. But we knew she would suck it up if she had to.

And so we started calling everyone we knew as the minutes started ticking away. 10 minutes late. 20 minutes. 40 minutes. 50 minutes…which was the point of no return. We were now officially screwed. Finally, an hour and 40 minutes later we lifted off unsure of what the future held…except that most likely Children’s Protective Services might be giving us a visit in the near future.

As nicely as I could I explained our situation to the stewardess. HOME ALONE.  TWO WITH AUTISM. MELTDOWN.

“Would you like a beverage?” she responded cheerfully.

I was tempted to ask for a double scotch on the rocks but decided that a drunk absentee parent was most certainly worse than a sober one when talking to government officials. Therefore, I took my seat,  bought the WI-FI service for $29.95 and sent out a plea for help on Facebook. I am happy to report that by the time we landed, I had three friends offer to help and a neighbor who informed me that she would take the kids to school. These are the times in life when “do unto others as you would have them do onto you” suddenly takes on a whole new meaning.

Flying five hours across the country we still had hope that we would make our flight but it was not to be. So we took our food vouchers and ate dinner in the airport, then took the shuttle bus to our hotel and finally settled in to watch a movie. When we turned on the t.v, guess what was being shown? Yep, you’re right… it just happened to be HOME ALONE. That apparently is the way we roll.

 

 

 

You Say You Love Me But…

/ Gardy Loo Pismire / 3 Comments

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You know my story. Three homegrown kids, three adopted from Korea. Two with autism and other disabilities. You know how hard we have worked to create this family by pouring our souls and our finances into getting exactly what our children need to succeed as they inch closer to becoming tax-paying adults.

You have been with us through our pregnancy issues and through our long and precarious adoption processes. You have stood beside us we were challenged to take on the school system and the medical establishment. You listened to my tears on those days where hour-long meltdowns were a common place occurrence and when our hearts were broken by  diagnoses that initially seemed as if they would be impossible to traverse. (They weren’t).

This YOU I am referring to is…you… my aunts, uncles, cousins, brothers, sisters, and best friends. The people I have known and loved for a life-time.You… the people who have stood by my side through thick and thin for so many years. You…the people who have treated my kids like their own. I adore you, but at this moment in time, I must confess that I am confused. You tell me you me and love all of my children equally.  You assure me my boys are amazing. You also say that my daughters are intelligent and talented young women. And you tell me you would like your Caucasian son to marry my Asian daughter someday.  And yet, you also tell me you are voting for Trump. I just cannot wrap my head around this because the YOU that I know cares deeply about others and asks WWJD?

And so I have to ask, how can you vote for a man who makes fun of people with disabilities? People like my children who struggle for acceptance. Individuals, who like my boys, just want the same opportunities as those who aren’t in wheelchairs and are sighted. You of all people know of our family struggles because you have held my sons hands when they were sobbing because they have been bullied, yet again, and you were livid at the way they had been treated. Yet, you support a MAN who should know better yet makes fun of the disabled anyway. Where is your righteous anger at him?

You know that there are millions of disabled in this world who are thrown off public transportation or denied jobs because of their autism or missing limbs. We’ve talked about this and you have expressed your dismay. So why is it that you do not understand that if the leader of the USA bullies the disadvantaged, that he setting the framework for how we are to treat one another? That Trump is, in effect, telling the school yard bully that it is okay to intimidate your kid and anyone within arms reach . Don’t you realize that these kinds of hurtful/shameful behaviors will increase and once again reach into my home? The home of people that you say you love!

Why would you support a man who promotes bigotry and hatred especially when you know that this increases the chances of MY children being hurt or killed by people who profess a dislike for those that are “different” from them? You’ve heard other children call my kids “Chinese eyes” as they pulled back on their own, mocking them, and trying in some way to make them feel “less than.” You have seen first-hand the hurt in my children’s eyes and their confidence shattered. Why would you throw your weight behind someone who promotes the worst in human behavior instead of the best? Why would you stand behind someone who promotes an “us vs. them” mentality that will be divisive instead of uniting? And when this promotion of hatred undoubtedly explodes into something unfathomable will you willingly acknowledge the blood on your hands because you stood with the man who was promoting it?

As if the above was not enough; what I really don’t understand is how you can support a man who disparages women, cheats on them and makes inappropriate sexual remarks about them. We all have mothers, sisters, and daughters that we value and love. If your mother or daughter was being treated in a disrespectful manner or subjected to sexual harassment by their boss or a man on the corner would you laugh about it and dismiss it the way you do with Mr. Trump? I would hope not because if you do what kind of person does that make you? Seriously. THINK ABOUT IT.

I could go on about Mr. Trump not paying small business people which quickly puts them out of business. And I could wonder why you would elect someone who can’t keep his own financial affairs in order and refused to rent to people of color. And I could wonder about a man who cheats on his spouse, lies under oath, and takes only the best for himself. But what I really care about is how Trump treats others… and that is what worries me. He acts as if he is entitled…. to dismiss reporters doing their job… to tease people who are different from him…to bully women and minorities while promoting discord and hate. These derogatory ways of treating others are the signs of a man who has lost his sense of humanity, his ethics, and his ability to promote and live in a virtuous manner. He is a man who lacks the understanding that most people are not born in the lap of luxury that he was and has no clue of what it is like to live the way most people do. He didn’t earn his wealth. It was inherited. Why would you vote for someone who is that out of touch with you and your situation?

So, when November rolls around and you go to cast your ballot, before you do, I want you to think about my children and how much you love them. I want you to remember all the wonderful women in your life. I want you think about the disabled, the poor, the elderly, and all the people who you respect and love who do not look like you. And consider this… that a vote for Trump is a vote against people like me who love their children with challenges. A vote for Trump is a vote against all the females in your lives. And a vote for Trump is a vote against kids who do not have the same invisible privileges that their white parents do. So think of me when you vote. Consider why I might be fearful for all those beautiful faces within my family if you vote for this Republican. Please… just yourself in my shoes… because someday you or a loved one might be walking in them.

“Principles of justice are principles that rational, self-interested people would choose to govern the society in which they were going to live, provided that they did not know, at the time they chose the principles, exactly what their own place in society would be.” – James Rachel’s forward  to John Rawl’s  book, Two Concepts of Rules.

The First Rose

/ Gardy Loo Pismire / 6 Comments

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As parents we are always doubting ourselves when it comes to our kids. There are no manuals and every child is so completely different from the other especially when they have issues that other children never have to face. I know of what I speak. With six children I have learned much and each one has taught me in a completely different way. Yet, I also know about those deep, dark, slippery wells that you sometimes feel like you cannot climb out of  when things are tough which often seems to be the case when your children have life impacting disabilities. It makes you question yourself and all you are doing to an even greater extent than ever before.

Paul struggles. He has autism and several other medical issues but his social skills are pretty much on track. Until you are around him for awhile you would probably never guess the extent of his issues and how they impact him everyday. But impact him they do. And our family too. Constantly.

Sometimes parents whose children have a disability find it hard to let go. Sending them to the store alone, even though it is just down the block, is terrifying when you know that your child is somewhat gullible and naive. But when the older teen years hit you realize that holding on too tight is a hinderance and not a help so you start loosening the strings. So recently Paul has been walking to the store by himself which gives him a sense of freedom that any 15 yo boy needs.

On Sunday Paul asked to go to the store. He had earned some money and wanted to buy himself a special snack… so off he went, hands deep in his pocket holding on to his hard-earned cash.

About 15 minutes later he returned with a perfect red rose in his hand which he shyly gave to me.

“I know I haven’t been treating you very well lately so I bought you a rose to show you how much I love and appreciate you”

I cried. He smiled and I think he knew that in giving me that beautiful rose he actually gave me so much more than just a flower. He let me know, that despite my mistakes and frailties as a parent, I really am doing something right by my kids. And even more importantly, I see him growing into a lovely young man who is doing good things like every decent and wonderful human being does on his own and without my help.

God, I love that kid!