Autism Touches Every Aspect Of Your Life

Autism sucks. At times it contributes to immense suffering for both the person with autism and his/her family. Sometimes it just does. Period. End of story.

Frankly, I have it easy if you consider the many behaviors that encompass the entire spectrum of people with autism. There are those people who cannot speak. or toilet themselves or self-harm. My sons have none of these issues. We are fortunate.

But sometimes I get weary of the constant pushback.The whole I say “yes”, so he says “no”. The fifty pokes to my arm everyday. The constant giving of some of the deepest parts of myself and getting very little back in return. The feeling that I am doing too much, or not enough, and either way believing whatever it is I am doing; I am most definitely not getting it right. Sometimes it is downright discouraging feeling that your choices are limited, as is your pocketbook, in your ability to get your children the help that they need. And for those of us facing mental health issues along with autism the chances to obtain needed services decrease even more until the quagmire you are in looks a lot like quicksand and it feels that way too.

Yes, I know that my boys are teenagers and some of this is normal teenage behavior but often it feels like it is teenage behavior on steroids and the doses are getting larger by the minute.

Over the years, I have heard comments such as “This too will pass.” Will it? When? Or “You are building character.” Seriously? We have enough character in this house to write our own sitcom. We don’t need anymore. So now, after all those years of worrying about offending others; I no longer put up with those people who “give you the look” or make”kindly” suggestions on how you could improve your children’s behavior. To them I suggest: you are not fighting the daily battle so you have no say. Keep your thoughts to yourself. I don’t need them and neither does anyone else who is doing their best day in and day out.

Maybe someday things will get easier for our kids. There will be less bullying. There will be more services. Schools will do what is right and give kids what they need to reach their full potential instead of fighting parents every step of the way. But until that time, parents are here engaged in a daily battle for their kids rights and it is sometimes beyond exhausting.

So the next time you see a special needs family don’t judge. Just give them a smile or a kid word and know they are dealing with more than you will ever have to. Then go about your business thankful that your family is doing well.

 

 

 

I Wonder If…A 10-Minute Poem Challange

At night I hear

Your ragged breath

And wonder if…

It was soft and peaceful

With her

I wonder if…

You touched her

In that soft and gentle way

That you used to stroke me

When we made love

I wonder if…

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Her lips tasted sweeter

Than mine

Her moans were

More urgent

Than mine

And if…

She reached for you

With a desperate ferocity

That I once had for you

I wonder if…

Her “LOVE” for you

Was conditional

On ALL the money

That you sent to her

Or if it was true

That she loved

That middle-aged man

That I once thought

I would grow old with

But now am not so sure

I wonder if…

You should go

To her

With Our Children

Introduce them to their

“NEW” mommy

And see just what she is made of

See if she still dresses

As if on a red carpet

When the only thing admiring

Are teens with worn out

Attitudes

And autism controlling

Every aspect of her life

I wonder if…

She would still greet you

Half-dressed

A woman with no cares

Pleasing you sexually

As you lay back

Watching as she went down on you

Expecting nothing but your

Total devotion to her family

And your money in return

Or would she turn into me

Right before your eyes?

Old and overweight

Using a “STRONG” voice

And having expectations

Of things besides

A big dick

And gifts and your time for everyone

But her

I wonder if…

Your dream of the perfect

Submissive youthful woman

Would suddenly be

Popped like a giant balloon

Air bursting out

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Like flab over her bikini

And if…

She would stay

Calm, peaceful and serene

Peppy and pleasing

On this merry-go-round

That we call our lives

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Beets And Betty Davis Eyes

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BEETS

Several years ago, in preparation for an upcoming trip to Scotland, I started working ernestly on our family trees and found we are related to many Kings and Queens from France, England, the Netherlands, etc. Needless to say this has provoked many interesting conversations around our house.
Andre: Beets? Beets? You know I don’t like beets.
Me: You are going to have to try them. They will taste great.
Andre: I know what happened to the kings in our family
Me: What
Andre: Their mothers fed them beets
Me: Eating beets has never killed anyone
Andre: Want to make a bet? I bet if you analyzed their stomach contents you would find beets.
Me: Why Do you think that?
Andre: Anything can be hidden in beets
(Not to be outdone) Paul: Yeah the color hides everything
Andre: I am sure they were poisoned with beets
Me: Doubtful. Who would want to poison them?
Andre: Their mothers
Me: WHATTTTTTTTT?  Mothers would not poison their children.
Andre: Oh yes they would
Me: Come on, Andre. You are letting your imagination run away with you
Why would a mother do that?
Andre: Because they want the power.
Me: What?
Andre: Women didn’t have power and they wanted it. It’s been that way through history. Mothers always want to find a way to control their children. You can’t deny it can you?! And beets were the way to power.
Me: You will still be eating your beets.
Andre: Drats. I thought this little history lesson would change my history with beets.
Me: No way, dude.

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BETTY DAVIS EYES

The things your kids share with you in the car.
Andre: I think it would be awesome to be able to read someone’s mind.
Me: Why is that
Andre: Because you could do all sorts of wonderful things for them like buy them the puppy they have always wanted.
Me: Andre, you are the one who wants a puppy
Andre: I’m just saying…you know there would be one time when it wouldn’t be so good to know what someone is thinking.
Me: When would that be?
Andre: When they are sitting on the toilet going to the bathroom. I mean the things that go through your mind when you are on the toilet…well they are just not things you want others to know
Me: Is that why you spend 30 minutes at a time in the bathroom?
Andre: Might be

 

“FOR YOUR OWN GOOD” List

I don’t know about you, but there seems to be an exclusive list that it handed to each woman during the heat of labor which is promptly and conveniently ignored until the first child heads off to school. It is then, during Kindergarten Round Up, that you realize that every parent in the building decides what kind of person you are after watching your child interact for exactly 4.2 seconds and he is doomed to be a social pariah for the rest of his educational career. It is then, at that exact minute of total mom failure, that THE LIST suddenly re-emerges only to hang over our heads for eternity, flapping in that empty space that our brains used to occupy.
Every mother knows about THE LIST. It consists of all the things our kids must do at least once so that we can check the box that verifies to the world that we ARE A GOOD MOM.
Trying new food. The latest…brocollini….images-1
Yearly pictures at Sears…oops missed that one…but now that I am aware of that fact so by next Tuesday it will be done…semi-check.
Playing the piano and while he may not ready for Carnegie Hall, he does know where middle C is located…images-1
Now B is the sports minded one in our family but because two of our three children get crazed if something as small as an ant touches them, trying to knock out athletic activities…well… it’s a challenge. If I had my druthers I would just scratch that whole section off THE LIST because several family members consider high quality endurance sports akin to laying on the couch and dipping ruffled potato chips into a savory dip. (the endurance part comes when you have to turn the chip around and dip again being careful not to double-dip)
But I have to admit that I do have a fear that scratch outs might just not get you into heaven so I persist in introducing my kids to new sports, knowing in my heart of hearts, that is what all GOOD moms do. That feel-good, doing-the-right-thing, going for Mother Of The Year, attempt is what lead us to the Broken Leg Ice Skating Rink yesterday afternoon where the kids tried ice skating for the very first time.
 I will admit that sometimes it seems as though it takes a while for my kids to get comfortable with new activities. First, we have to check out each and every toilet in the entire facility. If the seat is comfortable then my kids might give it a try. If not, we are OUTTA there thanks to Andre’s unrelenting complaints about the lack of high-quality plastic engineering.
Next comes the vending machines. Anything that has hidden ingredients that make one of my kids break out in hives is considered an immediate success and suddenly every one wants a buck to insert into the machine as they rapidly make their way towards anaphylactic shock.
Finally, throw in a 16-year-old cashier who is making minimum wage but will answer every one of the 20,000 questions thrown at them about the history of said sport…the equipment used and the rules of the sport, then participation is a definite maybe because all bets are on that they can continue with the questions until the place closes for the evening. Better yet, if the cashier can quote numerous safety statistics; then its a go-home because no sport is even safe enough for my boys. Yes, even contemplating sports can be an exhausting endeavor.
So after spending one half- hour tying and re-tying the skates, using the bathroom…for the third time… and learning to walk on blades; the time had come for the kids to make their way onto the ice. If, as the old adage goes, you can smell fear; then the fumes around our family was like the pungent odor that follows us around for three hours after eating grandma’s chili. We just couldn’t shake it. As we left the bench, feet started going every which way but forward and the sound of our bottoms slapping the ice…HARD… reverberated throughout the arena. To top it off, I pulled my back out trying to hold up one child while falling down with another. Mom was done and judging from the little faces surrounding me, the vending machine owner was about to become a very rich man. AGAIN.
Yet, we persisted. Paul put his game face on and after one trip around the rink fell and got a bloody nose that spurted ten feet.  Gracie whined until her daddy escorted her like the princess she is around the rink. But I knew all was lost in regards to Andre when he spent ten minutes making it half-way around the rink with his toes turned in towards the wood paneling the entire time. Never have a seen a child so happy as when he took his blades off of the ice. His face actually beamed so brightly he was in danger of melting the ice.
Later, after exiting the rink, Andre looked up at me and said, “Well, those were absolutely the worst minutes I have ever spent in my entire life!” And needless to say, his assessment didn’t get any better despite being bribed with hot chocolate by B.
On the way home, Andre talked about the experience. His take?
“Well, I am glad that is over. I did it once, it’s a no-go and thank goodness I will never have to do that again. Now, mom, what else can we cross of your list of things I have to do?”
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“What list?””You know, the one that you have that makes me try everything for my own good even though we both know I am going to hate it. But still you try. Again and again. Pushing me to be a better kid so you can feel better about yourself as a mom. So really, if you think about it, this list is really about you and your feelings of inadequacy. Frankly, I think a therapist for you would cost a whole lot less than this “contrived family time.” I think that is something you need to seriously contemplate before one of us dies during these little mini-olympics of yours.”

And with that he was done.
But I’m not.
I want to know… how he knew about… THE LIST?
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Ch-ch-ch Changes

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We are in a restaurant discussing the fate of our marriage. The cards are on the table and the chips fall as they may. We spend the next hour talking about finances, what our lives would look like sans one another, and what this rupture would do to our innocent children.

He says: ” If we were to stay together there would be a lot of changes and I am not sure you would like them.”

“What changes might those be?” I ask.

“Well, I’ve never told you this before  but I am pro-life like they house I was raised in. I might want ours to be a pro-life household too. I would want our children to be raised this way.”

Whiplash has slapped me hard because I have shaken my head so violently trying to make this man come into focus again. You mean after 30 years of togetherness you felt like you couldn’t say something about this? WTH.

“And I want to be treated like the man of the house.”

Somewhere I hear the words obey mentioned.

I stare at this man I’ve saved and who has saved me numerous times over the past 30 years. He looks the same on the outside but obviously there is a lot changing on the inside. I’m not sure I like it. Actually, as a feminist I know I dislike it…a lot.

“What does this mean to you? Man of the house?” I ask… while I am thinking to myself…so you are finding your voice and now you want to roar. Roar out all the misunderstandings. Roar out all your “unheard” convictions. Roar out life as you imagine it should be while you figure out who you want to be. You want to be heard after feeling unheard all of your life. A hurt that started with your mother and one that you feel continued on with me.

My eyes stare back, unblinking, both locked into a battle of silent conviction.

“At the end of the day I want to know that my word is the final word.”

And in the end the only thing I can say is nothing. Because talking to this man before me is like talking to a stranger who speaks a different language, has different values, and wants different things than I do.  Things I never knew about. Things I never guessed. They are not the things that delight me. They are sharp and they sting the inside of my heart and of my head.

So I look down at my feet and stare at my crooked big toe observing how it leans to the left, as does my philosophy, and the tears start to glide silently down my face as my awareness of how deep this situation dwells in a land of which I know not; and it seeps from the very center of my pores.

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