Exchange-A 10 Minute Poem Challenge

Sometimes I wonder

What it will be like

For you to be away

Knowing that you are

Never coming back

Except for that special necktie

You wore at your father’s funeral

Which lies at the back of our old closet

Not being thought of until now

When you want something

From home

And nothing from me

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Will I miss you?

Wishing you were coming back for me

Instead of that old tie

Or will I feel free?

Without the encumbrance of your expectations

Which I never seem to be able to live up to

Anyways

Will I miss laying my head on your chest

In bed as we exchanged nighttime pleasantries

Before that last kiss when we turned away

From one another

Each heading off to our private dreamlands

Yours which features new lovers

With better everythings

Than I will ever again have

And mine in which I follow my heart

To a vast and empty wasteland

Where nothing grows ever again

Because of the poison that you have spread

All over me

Wishing I was

Younger

Thinner

Prettier

Quieter

Move Loving

Less Loving

A Better Mom

Funnier

Less Demanding

A Better Housekeeper

Instead of just accepting me

For who I am

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Someday soon I suspect

I will know the answer to these questions

And will, most likely, not like what I discover

Because I know I will miss you

Terribly

Hurtfully

Absurdly

Uncomfortably

And will have to endure

All this sadness and pain

Until I find Alice

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Who will lead me through

That oddly shaped door

Drinking the Kool-aid

In order to grow enough

To reach that handle

And turn the knob

That will bring me home to myself

To that place that I want to be

Safe and secure

Within myself and with myself

Appreciating all that I am

Which you could never do

And when I finally arrive

I will give myself a hug

Like you do

When meeting an old friend

And I will no longer

Be missing you

Because I will have found myself

Once again

I may be alone

But I’ll never again be lonely

Because now I am my own

Best Friend

Not beaten down

Not dismissed

 

But treasured for all that I have

And all that I am

Left to give to myself

And the world

All the gifts I possess

Which you returned to Macy’s

In exchange for fireworks

And a pink negligee

Size 2

 

 

 

 

 

 

 

 

The First Rose

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As parents we are always doubting ourselves when it comes to our kids. There are no manuals and every child is so completely different from the other especially when they have issues that other children never have to face. I know of what I speak. With six children I have learned much and each one has taught me in a completely different way. Yet, I also know about those deep, dark, slippery wells that you sometimes feel like you cannot climb out of  when things are tough which often seems to be the case when your children have life impacting disabilities. It makes you question yourself and all you are doing to an even greater extent than ever before.

Paul struggles. He has autism and several other medical issues but his social skills are pretty much on track. Until you are around him for awhile you would probably never guess the extent of his issues and how they impact him everyday. But impact him they do. And our family too. Constantly.

Sometimes parents whose children have a disability find it hard to let go. Sending them to the store alone, even though it is just down the block, is terrifying when you know that your child is somewhat gullible and naive. But when the older teen years hit you realize that holding on too tight is a hinderance and not a help so you start loosening the strings. So recently Paul has been walking to the store by himself which gives him a sense of freedom that any 15 yo boy needs.

On Sunday Paul asked to go to the store. He had earned some money and wanted to buy himself a special snack… so off he went, hands deep in his pocket holding on to his hard-earned cash.

About 15 minutes later he returned with a perfect red rose in his hand which he shyly gave to me.

“I know I haven’t been treating you very well lately so I bought you a rose to show you how much I love and appreciate you”

I cried. He smiled and I think he knew that in giving me that beautiful rose he actually gave me so much more than just a flower. He let me know, that despite my mistakes and frailties as a parent, I really am doing something right by my kids. And even more importantly, I see him growing into a lovely young man who is doing good things like every decent and wonderful human being does on his own and without my help.

God, I love that kid!

 

Control…Do We Ever Really Have It? Or Raw II

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You ask me why I have a need to control things. The short answer would be my sister’s severe illness when I was such a young child.  A young child whose parents thought she was too young to know all that our family was facing. I remember being snuck into the hospital (back then siblings were not allowed in) and seeing my sister, after many months of absence, now reduced to a human skeleton, not the happy normal-sized kid I was used to seeing. The guilt I felt was tremendous because I did not understand the situation. I was not told. I guessed a lot and interpreted things wrong. Guilt at wondering why bags of presents were being delivered to our home for her and not understanding why I was not thought of which in my young mind =not loved and not noticed. And how, I wondered even then, could I feel that sense of hurt and jealousy when she looked like death. There was also the guilt at hearing her scream when her shunt was cleaned daily and knowing I was okay. And even all these years later that guilt that rears its head in my professional life and makes me pass out on the floor when I hear a patient scream. I can look at anything but don’t let me hear the pain or I am a goner.  In my book guilt can sometimes=need for control= if I am in control less chance of guilt/suffering/pain. I know its wrong but sometimes my mind still takes me back to that little lost/confused and sad child.

I remember during this time of sickness and confusion, being moved from place to place while my parents sat a bedside vigil. That sense of unconnectedness does things to you. I understand the need to do that now…as a parent…but I didn’t as a child. Yes, my parents were sure I was in good hands. I knew most of the people I was with but some were strangers. It made me scared because back then I didn’t know for sure what was happening and no one thought to tell me. And being left and having no control in where you are going invoked feelings of jealousy that made me wonder why my sister was so special and I was not. Everyone knew where she was…did anyone know about me?

Being so aware of death/illness makes you acutely aware of the little control you actually have so I guess I have spent my years trying to control all aspects of my life which we all know is an exercise in futility.  Some people handle it by drinking. Others have sex with strangers trying to make a connection that somehow they feel they missed.  Others drive too fast, take too many pills or eat too much. Others show no obvious issues with it at all. Mine is control. And control, and the lack of it I feel in our relationship, makes me frightened to death and sometimes I push for a resolution because I feel like that little girl again. Her world chaotic. Her world upside dow. Her world with no forthcoming answers. Her world in control of others and now the master controller is B. And I feel like 1,000 little scattered pieces laying about, disorganized, without the glue of control to hold me together.

You wonder why I feel the need for control.

I watched my parents divorce. All the heartache and stress that went along with a cheating husband. My mother’s pain written in a note I have to this day. And then they divorced and within three years my mother was dead at 50, killed, I believe rightly, by all the stress which took her, a non-smoker, in the form of lung cancer. And I look like her. I have the same moles. I have the same body type. The same nose. And I don’t want to become a statistic like her. Illogical I know. But still dead after all this upheaval… after all the pain none of which was her doing…though that is not the case with me. I have caused some of my own pain. But this I know: stress kills and I am sure it is killing me. Maybe like it did her.

I have enough stress with two children who have significant challenges in their lives. Autism = stress. And now my marriage teetering on the edge of HWY 1 with no guardrail and a 1,000 ft drop to the ocean below. And sometimes I wonder if I will just drop dead of a heart attack or will it be a slower more painful way to contemplate the end of life as I know it because this much stress is like a IV drip of poison creeping into my veins. And so I want to take back control from B in a misguided attempt to avert what was my mother’s fate and not have it be my own. Because I want to live free of heartache, being responsible as much as humanly possible for my own pain, when I must endure it, and not have it foisted on me like a drunken sailor grabbing me from behind and taking what is not his to take.

The mind is a funny thing. We know that what we may be thinking is be wrong.Screwy thoughts  that we recognize as inaccurate.  But those feelings are what trip us up and make us believe things that we know in our heads don’t make sense but to our hearts don’t matter. Our hearts often have a mind of their own, too busy working to keep the blood flowing, rather than worry about correctness of how it is being done. Yet, my heart hears unsaid words. It sees hidden emotions on a persons face. My heart squeezes the truth that goes coarsing through my veins and it ignores the science of it all. My heart stings. It whispers with every whoosh. And for the past few days, I would bet my bottom dollar that it has cracked in two, blood leaking into my drowning sticky soul.

You ask me why I feel the need for control. It’s because I no longer trust you to take care of my heart and the love that it holds. You have held my heart in your hands and you have not been gentle with it. You have treated it as callously as a hooker treats her next trick.I no longer trust you to take care of me the way I felt I was not taken care of  when I was a child. I no longer trust that my pain is just pain and not leading to something more deadly as in the case of my mother. I no longer trust your words or your actions because you don’t love me and trust is the glue that holds love together.

You wonder why I feel the need for control? Because parts of that little girl remain behind and while I may be a very strong and capable woman sometimes that little girl is stronger when she faces what she perceives to be danger. And she tantrums and pushes for resolution while trying to gain control. Because she is unsure. Scared. Feels unloveable. And somehow she incorrectly believes that control will give it back to her and make her feel whole again. Strong again. Capable once more.

Someday I hope that someone somewhere will take that little girl her by the hand, thrust a mangy stuffed gray much loved puppy into her empty arms, and along with a great hug; tell her that it will all be okay. And maybe someday she will understand in her heart of hearts that control is an illusion and that the only thing she really ever controlled was herself and, finally, that will be enough and she can just let go and get on with living and playing hopscotch again.

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