Weary

Don’t Tread On Me

/ Gardy Loo Pismire / Leave a comment

When we moved I took money from my private account and bought several Persian rugs for pennies on the dollar at an auction held at a rug store that was going out of business. I love those rugs… all hand woven and hand dyed from far away lands. I love to imagine the weavers and where they were weaving. I love to imagine their happiness when they sold one after all their hard work. I like to imagine the smells and the scenery that these rugs saw and all the people who have walked across these rugs and found them as remarkable as I. I also wanted something of value to pass on to my kids that they could remember and then enjoy in their homes someday.

When I bought these rugs I asked B to go with me to the auction but he wouldn’t. I asked him to go so we could spend time together and to keep my spending in check because I knew that if cheap enough I might bring home too many. Well that day I came home with four rugs and I have been hearing about it in anger from B. That I went and spent MY money even though he didn’t want me to. Frankly, his carping about it these 4 or 5 times in 6 weeks started to ruin my enjoyment of these beautiful treasures. Finally, I had had it. I told him if he ever said another word about it I would burn them…after all they are only things.

So Tuesday once again the words came tumbling out of his mouth. Imagine his surprise when he walked in the door last night with our son and saw the rugs in a pile at the front door.,

“What’s going on with the rugs?”

‘I’m getting rid of them, ” I said sweetly without an ounce of anger in my voice. “I haven’t decided if I will give them to Good Will or just put them in storage somewhere until I die and they can be distributed to the kids.”

Paul was confused, “Mom, I really like those rugs. The house looks bare without them and it is noisy.”

B chimed in, “Put them back. They look good. I like them.”

Paul, “Mom, why are you doing this?”

B, “Why are you doing this?”

Me. “B, do you really want me to discuss this in front of Paul? Is now the right time for this?”

He nods okay.,

“Okay, Paul, here is the story. Your dad has been upset that I bought these rugs out of my own money. I am tired of hearing about it as it spoils the beauty of them for me. So rather than your Dad getting distressed when he sees them I think it is better that he doesn’t see them which is why I am getting rid of them. Relationships are what is important in life, not rugs. I love your Dad more than a rug. Rugs are replaceable but love has no price. If something like a rug if making your Dad so upset then I don’t need it and it is time for it to go.”

B says, “Look I will buy them from you if that means they can stay.”

“Not interested,” I replied.

“Except for the big one. You can have that one for a half million dollars,” I joked.

Later, I went to pick up daughter from dive team.

When I got home the rugs were back on the floor where they belonged.

“They look good there,” said B with a look of embarrassment and a pleading look in his eyes. “I am sorry. I will never bring up the rugs again if you will just keep them here and let our family enjoy them. Deal?”

“Deal”

IMG_0786

Autism Touches Every Aspect Of Your Life

/ Gardy Loo Pismire / 2 Comments

Autism sucks. At times it contributes to immense suffering for both the person with autism and his/her family. Sometimes it just does. Period. End of story.

Frankly, I have it easy if you consider the many behaviors that encompass the entire spectrum of people with autism. There are those people who cannot speak. or toilet themselves or self-harm. My sons have none of these issues. We are fortunate.

But sometimes I get weary of the constant pushback.The whole I say “yes”, so he says “no”. The fifty pokes to my arm everyday. The constant giving of some of the deepest parts of myself and getting very little back in return. The feeling that I am doing too much, or not enough, and either way believing whatever it is I am doing; I am most definitely not getting it right. Sometimes it is downright discouraging feeling that your choices are limited, as is your pocketbook, in your ability to get your children the help that they need. And for those of us facing mental health issues along with autism the chances to obtain needed services decrease even more until the quagmire you are in looks a lot like quicksand and it feels that way too.

Yes, I know that my boys are teenagers and some of this is normal teenage behavior but often it feels like it is teenage behavior on steroids and the doses are getting larger by the minute.

Over the years, I have heard comments such as “This too will pass.” Will it? When? Or “You are building character.” Seriously? We have enough character in this house to write our own sitcom. We don’t need anymore. So now, after all those years of worrying about offending others; I no longer put up with those people who “give you the look” or make”kindly” suggestions on how you could improve your children’s behavior. To them I suggest: you are not fighting the daily battle so you have no say. Keep your thoughts to yourself. I don’t need them and neither does anyone else who is doing their best day in and day out.

Maybe someday things will get easier for our kids. There will be less bullying. There will be more services. Schools will do what is right and give kids what they need to reach their full potential instead of fighting parents every step of the way. But until that time, parents are here engaged in a daily battle for their kids rights and it is sometimes beyond exhausting.

So the next time you see a special needs family don’t judge. Just give them a smile or a kid word and know they are dealing with more than you will ever have to. Then go about your business thankful that your family is doing well.