Month: December 2015

Surprise! We Are Going To…

/ Gardy Loo Pismire / 2 Comments

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I’m not big into surprises. I like to plan my life in advance. If I had my way I probably would have every day of my life planned out in pencil for the few necessary erasures that would be required here and there. So imagine my surprise when B announced “I think that instead of taking this business trip to China alone I would love for you to come with me…oh and by the way, we will also go to Tibet… and Nicole is coming to babysit. So what do you say?”

Tibet. Place of my dreams. A place of full of “good” karma. A place so breathtakingly beautiful that I hear that you often just forget to breathe as you stand in front of the Himalayan Mountains in awe. It’s the place where dreamers, doers, climbers and athletic persons who are all in supreme shape go to test themselves both mentally and physically. And it’s where the base camp for Mt Everest is located which we will be visiting in the dead of winter. Frankly, I’m a little worried. Why?  I cannot do one pushup unless I plank against the wall. My idea of cold is 75 degrees and I have knee replacement surgery penciled in on my calendar for March 27, 2019. Oh and one more thing…I hate to fly. Seriously hate it and take out extra life insurance as a cushion. So why am I going?

I love my husband, that’s why. After a year of the “almost divorce” consisting of six months of fights, disappointments, therapy, sadness and worry; the fact that he wants us together at all is a huge testament of how hard we have worked to try and find each other again. It brings me joy to know that out of all the people he would want to spend his time with… it is me. Still. Again. Now. And even better, I want to spend time with him too as our friendship grows into something deeper and more meaningful to us at this stage in our lives.

I am also going so that I can challenge myself. No, I won’t be going for the summit but I will be standing there looking at a mountain that has spurred people to accomplish great things and brought them closer to “God” in whatever form you believe she/he takes. And I hope some of those feelings… the exhilaration, excitement, and the oneness with “another” will touch me in ways I have yet to experience in this lifetime.

Finally, I am going because I truly believe that travel is one of the keys to genuine peace with one another and within the world. Whether it is 2,000 miles or 200 ft; leaving your comfort zone is necessary for growth because it frees you from the tethers that keep you trapped within the confines of our own mind. Being away forces you to look outside yourself and sometimes dig deep within yourself to find answers to the obstacles you have put in your own way.

So, YES, I’m going to Tibet. YES, I will scamper on Everest! And YES, I will be going with the person I care about the most in the world! And if I die at least they can write on my tombstone “She summited in life just not on Everest.”

Jigsaw Puzzle of Life

/ Gardy Loo Pismire / 2 Comments

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We never enjoyed doing jigsaw puzzles until this summer when my 90 yo aunt introduced us to them while we sat on the summer porch looking over the lake. After that, Gracie and I were hooked.

There is nothing quite like time spent doing a jigsaw. Life slows down, your senses are heightened and magic begins to happen as an image slowly begins to form. All that hard work and in the end you see the results unlike so many things we do in life in which we never “see” what we actually do. But the best thing about the jigsaw that happens is the time that Gracie and I spend together. We sit in near silence except for the “eureka” that is voiced triumphantly when we find an elusive piece.And sometimes in this quiet time a different type of magic occurs and little bits of conversation emerge that never would otherwise.

“Mom,” she says with a sense of pain and frustration that catches the words in her soft little voice, “Celeste (her nemesis) asked me in front of my friends, “Can you see out of your eyes?”

I give a snort of indignation.

“So what did you say?”

“I told her, what, do you see me with a white cane or something? How can you ask such a stupid question?”

“Well done. I hate when people try to get our goat and I am proud that you didn’t let her.”

These are the types of conversations that my tween and I have as we stare at 1,000 little pieces scattered over one small card table. Brief, sweet, insightful…I hear things I normally wouldn’t have as we sit in the silence together. It’s perfect amount for a 12 yo who is not sure she needs her mother anymore and enough for me not to put my foot in my mouth and say something unnecessary or unneeded. And in that, I realize our words together are a lot like those jigsaw pieces…small, misshapen, but often fitting together until a picture is created. And that is enough for both of us right now.

What Is Happiness?

/ Gardy Loo Pismire / 2 Comments

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Lately I have been thinking a lot about happiness…as in… what is it really, how do we get it and most importantly how do we hold on to it?

Sometimes I know what happiness is. It is a warm cuddle with a baby who looks at you, eyes wide, and smiles so broad you wonder how it is contained on such a small face. It is laying my head on my husband’s chest and feeling its rhythmic rise and fall and with it the feeling that everything will fine in all that we have created. It is writing the ‘perfect’ piece in which you feel you have gotten your point across and a bit of your own humanity as well.

But, I wonder, is happiness suppose to be this fleeting…small moments in time that when added together don’t account for all that much? And what is the difference between being content or feeling joy? Is joy just happiness on steroids and is contentment just joy three times removed? Or is happiness just a deep appreciation for a moment felt whether it lasts three seconds or five minutes? And the big question… how do I feel more of all of these positive feelings and hold them in my hand like pearls savoring their smoothness, shape, color and beauty?

I once had a friend named John who swore he never had a bad day. His secret, he told me, was that he would get up in the morning, look in the mirror and say out loud, “John, you are going to have a great day!” And according to him he always did. For John, a “great day” was simply a state of mind, a place that his mind took him to and stayed with him there as the hours counted down from midnight and back.

I’m not sure what happiness really is but I know I would like to experience more of it and expand that feeling for a longer period of time when I do happen upon it. I would like to find more of that “elusive state of mind” that allows happiness to be seen easily and enjoyed fully. And finally, I would like to one day be able to define for myself and others exactly what it is because until I can answer question I suspect that it will remain a random feeling instead of a large part of my everyday life.

So here’s to happiness…may it find us all easily and may we chose to see it when it arrives.

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A No Negativity Day

/ Gardy Loo Pismire / 2 Comments

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One of the things that Pema Chodron talks about on her Udemy lecture is exceedingly difficult but excitingly profound.

Chodron says that once a week we should strive to not talk or act out of a place of negativity and that by refusing to act out of negativity it creates a sense of heightened awareness. This is especially true to observe in regards to ourselves. None of that negative self-talk (I should have know, I should have done better, I am so stupid…or whatever it is you say to yourself that is done in a negative state of mind) is helpful; its only destructive. Chodron states that when we engage in negative self talk we are just throwing kerosine on the fire of our soul.

When you are going through an “almost divorce” it is difficult to not engage in self-talk that is defeating and detrimental. The “what-if’s” and accusations of all that is wrong with the relationship and YOU are difficult to not take on when a monsoon of sadness and negativity is swirling around you. But in order to see things with a new perspective and to gain our grounding we must.

So let’s challenge each other to each live tomorrow (Friday) within the positive instead of the negative. Then on Saturday we can go back to being as negative as we desire LOL!

Getting Back To Life

/ Gardy Loo Pismire / 3 Comments

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When I started this blog I made a promise to myself that I would write everyday and have pretty much stuck to that come hell or high water. I made this commitment out of a primal need to express myself after B had talked about a “maybe” divorce. This was/is my safe place to vent those things weighing heavily on my mind. It was/is a place I could use to say the words I needed to say but not always to B because they were too painful and raw. Blogging was my escape from life in the sense I could look at my life as if I was an outsider and consider it as such. I thank everyone who has read what I have written and given me a nudge, a kind word, or pointed things out that I needed to consider. So many people have helped me on this journey.

Recently however, I have decided I must get back in the game of my life. In my “real” life I write magazine articles and since the “maybe divorce” I put those assignments on hold. I also stopped working on the three novels and a child’s picture book that are all in various forms of disarray. While the blog has been helpful in that it helped ensure that I didn’t check out all together, it has also taken up time that I probably need to use to complete what I started and finish SOMETHING… ANYTHING. So while I will continue writing, maybe still on a almost daily basis, I have decided to allow myself a little flexibility. We shall see what happens!

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Of course, now that I have written this I will probably blog more than ever…go figure!

 

 

IEP Services From The School District

/ Gardy Loo Pismire / 2 Comments

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For years we have been fighting our local school district to get our son what he needs in order to learn. Comprehension is sometimes difficult and math often impossible. We have watched him struggle to learn things that others grasp without effort while the school district ignored our concerns. Yet, if he is taught using particular methods he is often able to do the work that is required. Unfortunately, we do not yet know some of the methods that he would benefit most from.

We first realized he was having difficulty with math in first grade. We brought it to the attention of the IEP team. Our concerns were dismissed. In second grade, “It just takes some kids longer.” In third grade, “So he won’t be at the top of his class in math. (Yeah, duh!)” We then paid for him to go to an after school program at the cost of over $400 per month to learn his multiplication tables which the district could not manage to teach him. In fourth grade, he really started slipping but it was “Well, we can’t do anything now because he isn’t failing.” The rage I felt was immense. We were trying to be proactive but the district wouldn’t take our son’s lack of being able to understand and apply concepts seriously. By fifth grade they couldn’t quite ignore it anymore but their solutions and IEP goals were meaningless. He is now in 8th grade and doing math at a 4th/5th grade level. SIGH. I can also say the pathway has been similar for reading and comprehension but not as difficult or severe. In retrospect, the things we would do differently are numerous including taking the school district to Due Process. But the end result is that we have refused to sign his IEP for more than two years and continue to work with an outdated one.This, of course, is beginning to make the district nervous for what it means for them should we instigate legal action.

One of the things we have been fighting for is a GOOD educational/cognitive/psychosocial assessment of our son as we have disagreed with the district’s findings. We feel this is the best way to discover the issues that are effecting his learning and how he needs to be taught to reach his full potential. We have had a well-known and respected doctor in mind to do this assessment who specializes in kids with multiple “things” going on and have been fighting for the district to get him seen by him. Thus far the school district has refused citing their policy (which is illegal, BTW) that IEE’s must be performed within 60 miles of our home. If you understood where we are located you would also know that these types of services are not available here.

It has been a long, hard road with often disappointing results and constant stonewalling from our school district. But after all this time we were just notified that they have agreed to this testing and with it comes a very belated victory for our child which has cost him dearly due to these very purposeful tactics and delays.

Unfortunately, no family should have to go through this. Yes, we have at times hired a lawyer to push our case but the cost is immense and we see very little action for the money spent. School districts often stonewall because most parents cannot afford legal services, they don’t understand the law and districts know that most parents get weary of fighting “the machine” and give up. It’s hard not too. When you are already struggling at home because of the way your children’s disabilities impact your home life taking on a huge school district seems impossible and the educational system counts on that. Yet, by not doing right by our children it puts a future drain on our economy because these kids get discouraged by their lack of understanding/comprehension/accomplishment and drop out of school. They then face a life-time of unemployment or underemployment and the use of social services that could have most likely been avoided had they had some measure of success in school. Prison and gang activity is also a direct measure of the failure of the educational system.

I wish I could say it has been easy but I can’t. In fact, fighting this battle against the local school district has contributed to our ‘almost divorce.’ But I do urge all parents out there to continue to fight for their children’s place in the educational system. I have to believe that eventually we will make a difference.

 

 

Oxytocin TherapyFor People With Autism

/ Gardy Loo Pismire / 3 Comments

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Several years ago we asked our doctor about using oxytocin a/k/a the “LOVE Hormone” with our sons. At that time the doc said he wasn’t convinced regarding it’s effectiveness and wanted to see more studies. Well, start writing on the prescription pad, Doc, because the results are in.

According to a recent study released by the University of Sydney using one squirt of oxytocin in each nostril twice a day changes how children with autism approach the world and their relationships in it. Both parents and clinicians reported that children with autism were more socially responsive after beginning oxytocin therapy. Increased memory, eye gaze and emotion recognition were just a few of the benefits reported.

In case you haven’t noticed I am all in and the next time we visit our doc I am going to ask to give it a try. It couldn’t hurt and it may do a lot to change how our interactions occur.

 

One of the things I love about blogging

/ Gardy Loo Pismire / 1 Comment

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One of the things about blogging that I love is seeing all the people from different countries visit my site and I, in turn, visit theirs. It makes me happy to think that often we are all capable of understanding the emotions that the other person may be feeling even though we may live very different lives and that our shared humanity allows us to connect because we have “been there” before or faced something similar.

I have been fortunate to have traveled all over the globe. To date I have visited over 40 countries. That is because we travel cheap, go where the deals take us and we go in the off season. We also exchange houses when we travel.

The safest I ever felt at night was in Stockholm, Sweden. The happiest I have ever been was in Korea. The place I felt in awe was in the thermal baths in the ocean off the island of Kos. The place I felt the most connected to was Scotland and the place I wished I could stay longer was Ethiopia.

The number of people who have opened their homes and lives to us has been humbling. We have been invited into homes after a meeting during a meal in a restaurant and the next thing we know is we are on our way to something unexpected, special and always memorable. And what I really have learned from all this travel is that people just want to feel understood, appreciated and believe that they have been heard no matter where they live. And really 99% of the world wants the same things: peace, love, understanding, full bellies, reasonable heath care, clean water and hope for the future.

I like to think that all of us bloggers contribute in some small way to world peace and understanding. One can only hope!

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YOU ARE THE JUDGE, JURY AND EXECUTIONER

/ Gardy Loo Pismire / 4 Comments

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This weekend I was on trial. YOU KNEW I have been having severe pain for weeks and was having it when the “incident” happened. You knew my cousin was visiting but you would not step in and control the boys when they were so out of control.  You did not step in to help but instead chose to sit in judgement me when I finally lost it. And I didn’t even yell. NOT ONCE. How dare you!

You say,” I don’t know if I can live with you because you yell too much”, so I quit.Now its, “I don’t know if I can live with you because you sound stern and mad and point your finger.” How would you like me to handle discipline in our home so our kids know that things are a serious matter? Smile sweetly and in a chirpy voice say, “Oh please, sweet boys stop what you are doing. I beg of you?” UGH.

I am NOT your mother. You are NOT my son. I am who I am. A person trying their best. Changing. Me Changing. Yet somehow it always seems as though I am the person in this relationship needing to be the one to change…what about you? Are you putting as much effort into those things I told you I would like to see you change? Let me answer that for you. NO you are not.

So let me in on a little secret. People get upset. Yeah I know you don’t like to because you want everyone to like you especially our kids. Our kids who know this is your weakness and exploit it. Our adult daughter who admits this and says it sucks for the adult but is grand for the child. Guess what, I have emotions that I show which make you uncomfortable because you don’t or won’t show yours because your mother punished you for it and you are afraid that will happen with me. No insist that it will/does so you use it as your excuse not to figure out who you are as an emotional being.  And yet you stand in judgement of me. And if I don’t do what you want, what you need, then you will leave. But surprise it might be me whose ass is hit by the door on the way out because I have to be who I am and frankly it ain’t so bad. Sure there are things that need refining. But at least I feel. At least I can say what it is I know as my truth, my faults, my goods and my bads.  I show those sides of me and no one has to spend their energy trying to guess what it is going on inside my head.

And surprise, here is one for you…often I can even understand why you feel the way you do. But just because I speak my truth in the way I do and you get flooded…that has nothing to do with me but with your relationship with your mother and I cannot deal with that because it is your issue that you do not want to have to look hard at.

And so I go to my therapist and we go to joint counseling but when are you going to go down deep and work on you? I’m trying to change for me, for us and for our family and to do so I am having to go to places I don’t want to examine but I do it because it needs to be done. When are you going to get brave and do that too? When are you going to really look at how your past is effecting our lives now and in the future?

 

The Shooting At The Regional Center Touches Too Close To Home

/ Gardy Loo Pismire / 1 Comment

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As I listen to the news about yet another mass shooting I wonder where did we go wrong? As individuals, as a society, as a nation and as citizens of the world? So much hate. So much misunderstanding. Too much religious influence. Too much disregard for others and ourselves. Too much interference in other nations foreign policy with its resulting unintended consequences.

My sons are served by the local Regional Center (RC) where we live. The RC serves individuals with autism, cerebral palsy, seizure disorders and mental retardation. They have allocated ABA services to my boys for several years and help with planning for their future. The people who work there are kind, loving and passionate people who work within the system to get their clients what they need so that they can live meaningful lives and reach their full potential. They are social workers, humanitarians and people trying to make a difference in this world. These are the kind of individuals who work at the RC…underpaid, overworked and empathetic in recognizing that disabled persons are often beat down by a society that ridicules those who are different. Most of all they try to give their clients and their families hope for their themselves and their loved ones with uncertain futures.

In the many years we have been served by the RC many of these case workers have become my friends as we spend time together trying to navigate a system in which the disabled have an unequal playing field where unemployment is rampant and the disabled are not seen nor heard. These RC workers often become of the voices for those who have little resources to take their concerns to the forefront of the political system.

Yesterday, I first became aware that something was not right with the RC when I received a phone call in the early afternoon. I picked up the phone to hear, “This is an emergency phone call. This is an emergency phone call. The Regional Centers will be open tomorrow.” Odd, I thought. Later I turned on the news and witnessed the carnage. I was horrified moreso than ever before, meaning ALL the unending shootings that have become a way of life for a country that in of itself is not suppose to be in a war zone.

So why did this particular act of violence have such an impact on me? Because I knew of these people. No, not the people who were murdered but I do know their co-workers in a different center and I shudder to think if it had been this RC instead. How, I wondered, would I explain this to my children had it happened here? How would I make them feel like the world was a safe place after walking through RC doors for so many years? How will the clients served by the Inland RC ever feel safe again in a world that already feels unsafe by many people who are autistic? How do you explain to a child that some people just view others as pawns in a game that is played with unwilling participants? How do you teach children to trust in a world in which just anyone can randomly shoot you in a restaurant, at work, on the soccer field, or at a concert; especially a child with autism who has already been bullied one time too often in his short life? How do you make them feel safe again?

The true answer is that you can’t because the shooters have taken away something that cannot be replaced with platitudes and pundit ideology…trust and the feeling of being safe. Yet, my kids have also learned that when bad happens that the response in the face of tragedy is the opposite. So while they saw sadness on the tv screen they also saw hugs, embraces, tears and people standing together to face adversity. But most of all they saw the love that fellow human beings can show one another and that defeats everything the terrorists stand for every single time.