Think Of Them

 

Sometimes I am just so disappointed in both B and myself on behalf of our children. Ideally, no child should be a child of divorce but our kids have even more compelling reasons than most not to have to their parents split up.

Our youngest three children are all adopted. Obviously adoption involves loss and children who have been adopted have already lost their first family. They already have certain holes in the hearts and as adoptive parents we do everything we can to try to patch them. But as hard as we try, for most adoptees, something is still missing. Some don’t examine these feelings or loss or abandonment until they are 20 30 or even 40 years old. Some, like my son Paul, live with this wound their entire lives. Always wondering who they are and who they come from. Always believing there was something “wrong” with them rather than something wrong with the situation they were born into. None of these kids deserve to have their family severed again. My heart aches for them should we divorce and the guilt is tremendous. I mean, we willingly and lovingly brought them into our “forever” family, as the adoption community refers to it. But we may not be forever to children who desperately need the stability of forever.

Both Andre and Paul have autism while Paul also has some mental health issues. In talking to their psychologist she says that divorce would devastate Paul and could take him to a place from which he cannot return. Who does that to a child? Who knowingly divorces knowing that this is a possibility? I don’t even know how to wrap my head around this and I don’t understand how B could either.

And Gracie is at the age where losing her family could impact her ability to sustain her own relationships. According to studies older children remain profoundly effected by vivid memories of suffering due to their parents divorce. They are concerned about the unreliability of relationships and fear of betrayal when they are older and divorce happens.

I know that there are good reasons for divorce and I know that not all kids suffer because of them. But I also know in a family like mine that divorce will be most likely be catastrophic because of the special issues that are involved. It seems so ridiculous and selfish to be talking divorce just because a marriage isn’t “perfect.” Nothing is perfect in this world and I hope our children don’t internalize it as this divorce is occurring because they are not perfect either. Although we would sit down with them and try to convey that it has nothing to do with them, I suspect that they will not buy into any easy platitudes.

So I sit here and hope with a heavy heart that things improve for us and for the sake of our children. For if we divorce they have the most to lose. They are the innocents.

 

Disjointed

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Not suppose to disagree. Somehow he thinks if he expresses himself that is the way it will be and no one should disagree with him. Express thoughts = big damn parade with balloons, dancing unicorns and me bringing up the rear with a banner reading “Anything You Want Honey. You Expressed Yourself. YEAH!”

All these years of being denied what he wanted because he refused to share now it must be his way. If he shares he is doing his part. No consequences. Period.

Excuse me. That’s not the way it works. You can’t say, “I am committed to you but the deep love is gone but I hope that maybe I find it again” and expect me to jump up and down like a cheerleader. “GOOD JOB, B!” waving my pom-poms around. I have the right to say FUCK YOU, which I haven’t because I am trying to maintain dignity and grace, but I just might.

It’s hard to lay in his arms at night. Both of us holding each other sweetly but tightly like we are each other’s life jackets trying to save ourselves from the waves washing up upon our relationship threatening to pull us apart. The safety of your arms no longer feeling as big and strong as I remember. And we both talk about the pain that is pulling us under and your words don’t seem to have the meaning that they did in the past.

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I try to remember that you are hurting too. I try to remember that this isn’t easy for either of us and that it is hard to find love again when two people are so scared, miserable from being scared, and unsure of the future. I try to remember that I KNOW WITHOUT A DOUBT that you would save my life, risking yours, if I was in peril. But I’m not sure about our marriage, which is in peril, for it seems you will save yourself and not us. And I will be left on that life raft floating all alone.

But still knowing all this, knowing that we still have something even though it is hanging by a thread, this morning I want to kick you in the balls hard enough to drop you to the ground the way you have dropped me. To kick you so hard it would be difficult for gain your breath so you felt like the air was sucked out of you just the way I feel you have stolen the oxygen directly out of my lungs. Would this showing grace and dignity I want to embody in my life? Perhaps it wouldn’t but this morning I am not sure I care.

End of story. Today.

Trying to Maintain Dignity & Grace

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Its hard. No doubt about it. When you feel so wounded and so hurt not to lash out. Not to want to say “Stop being an asshole!” over and over again. To not to want to destroy or implode the last vestiges of your relationship or something that is meaningful to the two of you.

It would be very easy for me to get in a “bad” place very quickly right now. A place I would not be proud of in the future. But I know that it would only serve to heap more shame, guilt and sadness on a plate that is already filled to the brim with it. So instead, I am trying to focus on acting with intentional dignity and grace. I am trying to use words that embody dignity and grace. I am trying to act in ways that show my love for myself, my family and B being mindful to incorporate these ideas into my actions. For instance, a small petty way was when B gave me a chocolate bunny for Easter yesterday and instead of taking a hammer to that damn 5,000 calorie creature I thanked him. So while my thoughts may not always be inline with my thinking regarding dignity and grace I am trying to  be mindful and change them too. Thanking instead of hammering. Acting elegant instead of spiteful.

I am trying desperately to remember that no matter what happens with this relationship, the truth is that ugliness, bitterness and anger will do nothing for anyone. And it won’t make me a better person. More importantly it will not make me feel better about who I am and will certainly steer me away from the person I have been trying to become. A more peaceful person. A happier person. A person who loves what is in front of her and not wishing for something more.

So even though B may not see a future together and even if there is no future to see I have to believe if I act with dignity and grace then it will allow the good stuff to come to me and to be seen by me. And that is what I need right now and in the future. I want to be mindful and happy with myself and I want to minimize regrets. I want to see the beauty that is all around me. I want to feel the softness of soft feelings and actions even though things feel angular and hard right now. I want my heart to be open to possibilities so that I can make decisions out of love for myself and not out of anger and confusion.

Dignity and Grace. In fact, I like them so much that I might just go get a tat. I have never had one and could never find anything that I would like enough to permanently place on my body. But maybe these are the most important things for me to remember especially now. Dignity and Grace.  They are my new mantras and just maybe my new ink.

 

Raw

I read a few of my writings to him

He was hurt and upset

Believed my words and thoughts were raw

He said:

“Why didn’t you let me see these

Before we went into the therapists office

Why would you save this for in there?

Why didn’t you let me see your words and let me

think about them before going in?”

I think:

It’s suppose to be a safe place

Exactly where we are suppose to take

Our deepest hurts and fears

Where we have someone to help us

Through the words and through the tears

He thinks:

Why did you ambush me?

It’s his real question

Unspoken with words

But spoken just the same

I think:

Maybe I just want to hear from your heart

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And not listen to your rehearsed

Very logical answers

Maybe I long to know

What you really FEEL not THINK

To hear words spoken from the heart

Not encased in the laughter you use

To deflect the feelings that threaten

To overwhelm you like a bad case

Of poison ivy

I am:

Guilty and sad that I hurt him

Wishing that I could say with words

The things I so easily write on paper

Perhaps they would be less complex

And easier to hear

But I am not sure that words are whats needed now

Maybe its deep feelings

Because we both want to run from them

Instead of dealing with the pain they contain

I know:

I still love him

That it hurt me deeply to hurt him

Even if that was not my intention

My intention was to be HEARD

And I wish I could take back the words

I said because I don’t want to see

Him retreat

Because of my pain

And his pain

Because really he just wants peace, love and rainbows

Happiness and joy

He claims he is a simple man

Uses it as an excuse

Not to touch those parts of him

That make him feel vulnerable and afraid

He says:

He is a simple man

But we both know better than that

 

 

 

So Paul’s Therapist Says…

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So Paul’s therapist said to me yesterday, “I know you are not going to like this much, less want to do it, but you will have to do this so it gets through to Paul. If he attacks any member of the family you must (without telling him) call the police and have them take him to the hospital on a 5150. He is getting too big and he needs a reality check that if he hurts someone there are dire consequences. If you do not do this now at this age while he still has a chance as he ages he will be incorporating this behavior more and more into his life. You have got to try and stop it now.”

Hearing those words cut me. Deeply. Call the police on your own child. You must. You have to. It is your obligation. Failure to protect your other children charges could be brought against you if you don’t. He has to learn.

And so I “get” the logic I must ask … if he was rational I would agree. BUT if someone  is undergoing and episode of psychosis/mental illness how can they just stop themselves? Is it as easy as all that? I think not.

One of the things that scares me is that police will come to our door. What if Paul were to run, resist being taken or because he cannot stand being touched in certain ways..hits an officer? We all know what happens to minorities in these times of situations. Often they are seriously injured or they die. How do you risk this happening because a 14-year-old is in a rage?

Yes, I know it is what must be done but what unintended consequences might result? Could I live with these if something horrific happened because I picked up the phone? Could I live with these if something horrific happened because I didn’t pick up the phone?

How do you wrap your head around all of this without it destroying your soul? Without it destroying…you, relationships, your child and your heart?

Nothing makes this possibility better. Nothing. All it looks like is a long scary road which I do not want to take but will in order to try and save my son.

 

 

Dyed Love

 

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I loved you once you know

Deeply. completely. selfishly

I devoured you…wanting you to know

Everything I was thinking

Because you couldn’t tell me

What was in your own head

So , instead, I put ideas into your head

While trying to force you to examine things

You had hidden away

From yourself for protection

Of a soul shredded

Long before I came on the scene

I am tired of you blaming me

For what the ghosts in your past

Did to you

And I am tired of seeking answers

From a man is not brave enough

To figure out whether he wants a life with me

Or without

I feel raw, used, scattered

Blown up into pieces that are gone

There is not enough glue in the world

For me to painstakingly put them all together again

Because I am busy and tired of trying to fill up

Your empty spaces and your selfish wants

The ones you know about (yes… those ones you selfish bastard)

And the ones you aren’t even aware of yet

but I am…

I am aware of more than you give me credit for

But I cannot put you together anymore either

You have to do it yourself

Stop depending on me to make

You feel good about yourself again

I can no longer carry your feelings for you

I can barely carry my own

When I remember I even have them anymore

Instead I remember a grenade

That exploded deep within my soul

And you are the one who threw it

Wounding us

You and me

And I wonder if we will ever be the same

For I am running on fumes

Somewhere near the end

Of wanting to figure all of this out

Wanting to run away from the pain

From You

From this life

That at times no longer feels right

Or loving or kind or cherished

A life that is made more complicated

By the issues of others

Until I can no longer differentiate between

Their issues and yours

But find I am growing tired of both

Of giving of myself 100%

When I just want to retreat

Somewhere deep. silent. and kind.

A place where I am no longer wounded

On a daily basis

A place where I can heal

And I can stand up again

Full of confidence. happiness. and belief

That I really do have purpose in my life

And that it starts with me

My purpose. my wants. my needs.

Alone

Without having to consider

And put first

The needs of anyone else in the world

 

 

 

 

 

Being A Mom Sucks Part 3 But Sometimes Autism Sucks Worse

I am in the airport finally going home with the tween daughter of the last few posts. I am excited to see everyone when I get a text from B.

Paul attacked me. He charged me and to protect myself I had to take him down to the floor and hold him there.

My adult daughter, Nicole, who is at our house witnessed this and I get a text from her as well.

I was scared for dad. Dad handled it so well but I was really scared.

I hold my breath and die just a little bit more inside.

Several days before I left for Chicago there was another altercation with Paul involving me. He hurt me in a rage while he was trying to get something that I had taken from him.

Paul has always lived on the edge of rage. Since we have known him and brought him home at 10 months old. His first act upon arriving at our home was to toddle over to his brother and throw him to the floor. It has been some version of this ever since. While they are great friends Andre always knows there is a chance that Paul will get upset and lives accordingly. We all do. It is exhausting at times.

At the age of 11 after much grief and debate, we finally broke down and started using meds to help moderate his ever shifting moods.We have a great med doc who listens with compassion and always tries to use the least amount possible in order to achieve stability. That said, we still have periods of paranoid thinking and depression which has worsened as he hit puberty. Sometimes I want to take him off all meds and other times when I think of doing that I am scared about how bad things might become. Worse. Intolerable. Maybe even dangerous.

And now this. Increasing violence to himself and against us. Not horrible…yet…but where do you draw the line? When you love someone, as we love him, it seems the line keeps getting stretched further out. Further out than you would allow for any other person you come into contact with. There is no aggression toward anyone else except those within our family. Yet I worry that if he was ever involved in some sort of police incident he would be killed because he would run or maybe struggle with an officer and we all know what happens to minorities who do so.

My heart feels like it has been shattered in pieces so many times this past year and I wonder if I can find all the pieces to put it together once again. My mother heart, my marriage heart, my lover heart and my friend heart.

I ache to be and feel whole once again.

Being A Mother Sucks…Part 2

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She didn’t like the art museum. Okay, I kind of “get” that seeing pictures of old men with shrunken penises and heads being lopped off may not be your cup of tea but what about the woolly sheep standing in a brilliant green field or the pretty cuddly kitten chasing after a butterfly. Surely out of the thousands of paintings on display you could find ONE you liked. Just ONE. NOPE.

She didn’t like our dinner. She ordered pizza…what’s not to like? It’s a dish she requests time and time again but today it was as if the waiter brought her a plate of liver and onions.

She didn’t eat much of the blueberry pancakes she ordered. What the heck…we have blueberry pancakes all the time! But with hotel prices at $12 a plate for blueberries and batter she couldn’t stand them. ARE YOU KIDDING ME!

She didn’t like the Field Museum…one of the greatest museums in the world. You mean to tell me Ancient China isn’t amazing? NO. Or the gemstones the size of small hills? NO. How about SUE the most complete T-Rex in the world? NO. Really? You didn’t like her either? BORING.IMG_4388

Maybe the Ancient Egyptians with their mummies…thank you… NO!IMG_4429

Or maybe the animals mounted and stuffed in all their glory? GROSS. There was nothing in the entire building that caught her fancy.

Okay, BOLD MOVES by the Joffrey Ballet. This one I was a little worried about. I have really never loved ballet but figure I am giving her some “culture” and if nothing else ideas for her routine. images-6 Of course, she developed a nosebleed in the first part of the performance but I’d be damned if we were leaving. Here is a kleenex. Stuff it up your nose. And so we sat through the three performances and I wept like a crazy old cat lady during the final one. Never have I seen something so beautiful and moving in my entire life. Never could I relate so well. Today I learned to LOVE ballet…my  tween daughter…not so much.

As a mom sometimes it feels like nothing you do is right.EVER. But then you finally catch on and realize it isn’t about you at all. It’s the hormones and your daughter is turning into a bitchy, selfish soon-to-be menstruating maniac and you remember back to a days when your mother could do nothing right. You didn’t like the dress she bought for you…it was too old fashioned just like her. You didn’t do the dishes and she did them for you because it was easier than dealing with the likes of you. You wouldn’t eat her pot roast and sulked like a two-year-old because there was only vanilla ice cream and not chocolate. You refused to SING ALONG WITH MITCH and instead turned up the volume on Led Zeppelin. And that is when it really hits you…horror of horrors… you realize that she has returned as you when you were a horrid cruel totally-into-yourself-snotty-14 year-old. Suddenly you have become your mom… old, boring and certainly not cool. Then, like the principle dancer who hastened her demise and threw herself upon a sword, you briefly consider doing the same, just so you can experience a quick and easy death rather than deal with a reincarnation of a teenage you in the house. That’s when you fall to your knees and wish for just one more hour with your mother so you could apologize, beg her forgiveness and tell her how great a mom she was and that you remember how hard she tried to create moments so special that you would remember them for the rest of your life but not appreciate them until your own daughter’s hormones went awry. And then you cry yet again because suddenly teenagehood is upon you and YOU aren’t ready to give up that sweet little girl that once hung on your every word, freely cuddled with you and loved you back without restraint. Yep, the teen years are upon us…God help us all!

IEP Services From The School District

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For years we have been fighting our local school district to get our son what he needs in order to learn. Comprehension is sometimes difficult and math often impossible. We have watched him struggle to learn things that others grasp without effort while the school district ignored our concerns. Yet, if he is taught using particular methods he is often able to do the work that is required. Unfortunately, we do not yet know some of the methods that he would benefit most from.

We first realized he was having difficulty with math in first grade. We brought it to the attention of the IEP team. Our concerns were dismissed. In second grade, “It just takes some kids longer.” In third grade, “So he won’t be at the top of his class in math. (Yeah, duh!)” We then paid for him to go to an after school program at the cost of over $400 per month to learn his multiplication tables which the district could not manage to teach him. In fourth grade, he really started slipping but it was “Well, we can’t do anything now because he isn’t failing.” The rage I felt was immense. We were trying to be proactive but the district wouldn’t take our son’s lack of being able to understand and apply concepts seriously. By fifth grade they couldn’t quite ignore it anymore but their solutions and IEP goals were meaningless. He is now in 8th grade and doing math at a 4th/5th grade level. SIGH. I can also say the pathway has been similar for reading and comprehension but not as difficult or severe. In retrospect, the things we would do differently are numerous including taking the school district to Due Process. But the end result is that we have refused to sign his IEP for more than two years and continue to work with an outdated one.This, of course, is beginning to make the district nervous for what it means for them should we instigate legal action.

One of the things we have been fighting for is a GOOD educational/cognitive/psychosocial assessment of our son as we have disagreed with the district’s findings. We feel this is the best way to discover the issues that are effecting his learning and how he needs to be taught to reach his full potential. We have had a well-known and respected doctor in mind to do this assessment who specializes in kids with multiple “things” going on and have been fighting for the district to get him seen by him. Thus far the school district has refused citing their policy (which is illegal, BTW) that IEE’s must be performed within 60 miles of our home. If you understood where we are located you would also know that these types of services are not available here.

It has been a long, hard road with often disappointing results and constant stonewalling from our school district. But after all this time we were just notified that they have agreed to this testing and with it comes a very belated victory for our child which has cost him dearly due to these very purposeful tactics and delays.

Unfortunately, no family should have to go through this. Yes, we have at times hired a lawyer to push our case but the cost is immense and we see very little action for the money spent. School districts often stonewall because most parents cannot afford legal services, they don’t understand the law and districts know that most parents get weary of fighting “the machine” and give up. It’s hard not too. When you are already struggling at home because of the way your children’s disabilities impact your home life taking on a huge school district seems impossible and the educational system counts on that. Yet, by not doing right by our children it puts a future drain on our economy because these kids get discouraged by their lack of understanding/comprehension/accomplishment and drop out of school. They then face a life-time of unemployment or underemployment and the use of social services that could have most likely been avoided had they had some measure of success in school. Prison and gang activity is also a direct measure of the failure of the educational system.

I wish I could say it has been easy but I can’t. In fact, fighting this battle against the local school district has contributed to our ‘almost divorce.’ But I do urge all parents out there to continue to fight for their children’s place in the educational system. I have to believe that eventually we will make a difference.

 

 

YOU ARE THE JUDGE, JURY AND EXECUTIONER

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This weekend I was on trial. YOU KNEW I have been having severe pain for weeks and was having it when the “incident” happened. You knew my cousin was visiting but you would not step in and control the boys when they were so out of control.  You did not step in to help but instead chose to sit in judgement me when I finally lost it. And I didn’t even yell. NOT ONCE. How dare you!

You say,” I don’t know if I can live with you because you yell too much”, so I quit.Now its, “I don’t know if I can live with you because you sound stern and mad and point your finger.” How would you like me to handle discipline in our home so our kids know that things are a serious matter? Smile sweetly and in a chirpy voice say, “Oh please, sweet boys stop what you are doing. I beg of you?” UGH.

I am NOT your mother. You are NOT my son. I am who I am. A person trying their best. Changing. Me Changing. Yet somehow it always seems as though I am the person in this relationship needing to be the one to change…what about you? Are you putting as much effort into those things I told you I would like to see you change? Let me answer that for you. NO you are not.

So let me in on a little secret. People get upset. Yeah I know you don’t like to because you want everyone to like you especially our kids. Our kids who know this is your weakness and exploit it. Our adult daughter who admits this and says it sucks for the adult but is grand for the child. Guess what, I have emotions that I show which make you uncomfortable because you don’t or won’t show yours because your mother punished you for it and you are afraid that will happen with me. No insist that it will/does so you use it as your excuse not to figure out who you are as an emotional being.  And yet you stand in judgement of me. And if I don’t do what you want, what you need, then you will leave. But surprise it might be me whose ass is hit by the door on the way out because I have to be who I am and frankly it ain’t so bad. Sure there are things that need refining. But at least I feel. At least I can say what it is I know as my truth, my faults, my goods and my bads.  I show those sides of me and no one has to spend their energy trying to guess what it is going on inside my head.

And surprise, here is one for you…often I can even understand why you feel the way you do. But just because I speak my truth in the way I do and you get flooded…that has nothing to do with me but with your relationship with your mother and I cannot deal with that because it is your issue that you do not want to have to look hard at.

And so I go to my therapist and we go to joint counseling but when are you going to go down deep and work on you? I’m trying to change for me, for us and for our family and to do so I am having to go to places I don’t want to examine but I do it because it needs to be done. When are you going to get brave and do that too? When are you going to really look at how your past is effecting our lives now and in the future?