Special Needs Families

Please Leave

/ Gardy Loo Pismire / 5 Comments

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This week while I  spent a week away at the ocean I wrote a “Dear John” letter to my husband. It was five typed pages, single typed. That’s what you should expect when you marry a writer I suppose.

This was not a letter I wanted to write. Six kids, several grandkids, 30+ years, lots of great times and discovery as we traveled the world together. Until recently, my heart still skipped a beat when I saw him. He is still sexy and the most handsome man in the world to me.  Other women think so too. So this is scary. It is sad. It is heart wrenching. No, this is something I never in a million years envisioned. I mean we got married in an old castle so our love would be timeless like the stones that held those old walls together. The castle remains standing while our relationship crumbles, the dust rising up thickly through the rubble threatening to choke us both.

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In the letter I told B that I would like him to move out preliminarily for a month so we didn’t have to say anything to the kids and disrupt their lives until we were positive of the direction that our relationship was going to take.. We could tell the kids that he is in China. I asked that he try to figure out who he is and what he wants the rest of his life to look like. I asked him to increase his sessions with his therapist. I told him to date, get laid or something. It’s time to move on for both of us. If you don’t know by now if you want to be with me then they way we are living is not giving you the clarity that you need. We need to shake things up a bit. But also just because you might decide you want back into my life there is a very good chance I will not be there and that that door will be closed and locked to you forever. For I am tired of you holding the master key to all the rooms in my soul

I was waiting until I got home to give the letter to him when we had time to spend together. However, on Wednesday night he told me his therapist suggested that we go back into marriage therapy. That triggered me and I told him I was no longer interested in attending therapy with him. I told him I wasn’t sure I wanted to be with him anymore, my love for him was quickly diminishing and that it was time we separate. He was shocked. He told me he loved me. I rolled my eyes over the telephone. I began to cry. He wants to keep trying. I don’t want to continue to suffer. Eighteen months is a long time to keep someone on a string. Eighteen months of wondering if today was going to be the day B walked in the door and said he was done was, in my opinion, 17 months too long.

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“It is awfully hard to admit that our relationship has expired but we both have felt it draining us and I see that we are getting resentful, frustrated and are losing hope if we have not lost it already. Sometime it feels like I’m “the other woman” waiting for her lover to choose between her and his wife. Loving him fully but he cannot commit to her fully because he wants both worlds. You want the world of having me for the business side of things (taking care of the kids, house, doing the things that make your life easier) but you don’t want to give your heart to me. You want to keep me on a string until you decide what you want and whether or not you judge me capable of giving it to you. Frankly, I am tired of that game, having to prove myself over and over again to some weird sets of arbitrary conditions that you change at your whim. It is time for me to get off this merry-go-round.”

I still love the man but just because you love someone doesn’t mean you should be together. Most woman would love to be with the man I was with for the first 25 years of this 30+ year relationship. It is hard. This is not what I expected as a come close to turning the corner on 60. I want happiness for him. I seek peace for myself…happiness will come later and that is okay with me.

“I know that putting myself through the discomfort of losing you and the changes that go along with it will not be easy. Separating will be hard and there will be times when we both will feel insecure, needy and totally off balance. I am sure the first time I see you with a new love my heart will shatter in a million little pieces. But I am also trying to remember that change is empowering because it will allow new things to enter our hearts and our minds. Things that we are obviously lacking as a couple may become available as we become single or enter into new relationships. Endings just set the stage for something new and allows exactly what we are needing or seeking to make its entrance into our lives.”

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So there it is. New beginnings. Painful endings. But I am okay and I will be okay. I am strong. I am invincible.  I am ready to move on from what I have today. I am not sure what the future looks like and I am okay with that. I am just trying to wish the best for all me included. I do worry for my children. Kids with autism do not do well with change and he has been an awesome dad. But…what is…is. And so everyday I have started my day with a meditation to bless myself and everyone in my life. Even B.

“I wish you happiness and that you are free of pain and suffering.”

It makes it easier to face the day and it makes me feel better.

I think it is time for me to get that dignity & grace tattoo

Power

/ Gardy Loo Pismire / 19 Comments

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I ask B to share with me the emotions he has  felt on this “maybe” divorce journey as part of the 365 Days Little Buddha Challenge. My intention is just to listen in hopes of greater understanding and clarity.

He says that he feels under appreciated, under valued, and like he has been in a rowboat rowing all by himself.

I ask what would it take to make feel him feel that he was valued and appreciated.

“For you to focus on the family instead of yourself. I work and have taken on a lot in the last 5 years.”

What would that look like I ask?

“I don’t know.” It always comes down to I don’t know. Or I want to have the last word in our relationship. My word is the final word. And I know that at 56 I do not want to become a caricature of who I want to be and who I am.

And as I ponder his answers I realize that everything he has said I feel the same way about. Exactly. Undervalued. Unappreciated. Unloved. And when you have two people who are intrenched in those kinds of feelings it seems like there is no chance of moving on.

I wonder how exactly he feels I focus on myself. My writing? My genealogy work? He has work, the gym where he works out with Gwinnifer, Rotary, Boys Scouts, his various  industry organizations and playing the bagpipes.  Yet, he does focus on the things he likes to do with our family. Boy Scouts. While I focused on getting the kids to their therapist once a week for years, hippo therapy, diving lessons and meets. I write and research…that is all I do for myself except clean house at least two hours everyday, make dinner, lunches, do laundry, grocery shop, taxi the kids around, work in the garden, paint all the rooms in our house, etc.

I think having two children with special needs has impacted our relationship in ways that most families never experience and it has increased the stress in our relationship. In addition, it has made it difficult to socialize with others who do not understand how we must live. So we have isolated ourselves as a couple and I have isolated myself as a person.

And as he says these things resentment screeching out of his words like nine-inch nails on a blackboard; I realize once again there is no way to get over this. Even if I bowed down and “obeyed” like he says he wants in a woman, it would never be enough because he will never see anything but what he wants to see/ how he wants to feel…resentment (which he denies), cheated, and all the un-everythings so that he can justify his feelings about wanting a new life, a new wife, and find a way to feel comfortable in his mid-life crisis which actually started 7 years ago when he bought a two-seater Mercedes convertible for a family of six.

And so I inch that much closer to the demise of a relationship in which one person never expressed his needs or told the truth and one who expressed all of it. Constantly. Who asked the deep questions that B couldn’t answer in an attempt to learn about his wants but never could because the information was top-secret and I never had that kind of clearance.

It is time to make the kinds of chances that break hearts. It is time to make the kinds of changes in which it feels that you have been eviscerated and your guts are hanging outside of your body for the world to see. It is time to let go and get on with life unhindered by 30-year-old anger and disappointment. For every time I talk with you I feel horrible about myself afterwards. I’m selfish. Not appreciative enough, skinny enough, loving enough, a good enough mother, a good enough wife, a good enough partner, a good enough person. Like I am nor will I ever be enough. For anybody and certainly for you.

“You took my power,” he says.

“If you really felt that to be true it was your responsibility to get it back, instead of blaming me for not having the guts to do what you should have done.”

So here it is. The power that you accuse me of stealing.The power that you’ve always had and were afraid to control.  It’s all yours and it always has been. Let’s see what you do with it.

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Re-Cycle

/ Gardy Loo Pismire / 5 Comments

 

Today you leave on a “business” trip

To give us space and time

And next week I’ll do the same

While our children

With all their special needs

Watch the slow

Splintering of our lives

Not seeing the whole picture yet

But getting a glimpse of what is to come

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Next week I will walk the cliffs

Gather my thoughts

And sit in silence as waves of emotions

Threaten like a gale force wind

To toss me off the path

Down to the jagged rocks below

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Wanting to make the decision that must be made

And hiding from it like a field mouse

Scampering everywhere just to avoid

Going THERE

Decisions that are far-reaching

Into children’s minds not yet formed

Which when released

Might set off an explosion

One from which this family may never recover.

I’m a freedom fighter

Setting a charge on a dark and gloomy bridge

As the flame slithers along towards it final detonation

But as you look up you see… it is your own loved one

Making their way slowly down the cobblestones

Their last seconds burned into your mind

As you try to squash the flame that you intentionally set

Not knowing at the time

Who the victims would really be

I know what is coming

More heartbreak, despair, second-guessing,

More anger, blaming and worry

Until at last

My soul will be left hollowed away

Into something completely unrecognizable to me

Something vast, flattened, and empty

Something I can abandon or recycle into something new

A vessel that only I can begin to fill again

And it’s my choice what to fill it with….

I think I’ll start with wine.

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Las Vegas

/ Gardy Loo Pismire / Leave a comment

Driving to Las Vegas is always interesting. Between the weird signs of half-naked women, the smiling cactus and the odd out-of-the-way museums; most of the time I feel like I have been  drinking before I hit the bar.

There is the Borax Museum sitting on the hill in the middle of nowhere. Even better, the airplane graveyard where huge jets sit waiting to be scrapped or built into a home for some eccentric old lady. And then there are the potholes. Dodging them keeps you away during this rather boring drive. Unfortunately, for our friend she landed in one yesterday that completely shredded her tire out in the middle of the dessert…at night… which is the thing nightmares are made of.

There is also the last alphabetical road in America on the drive…Zzyzx Road which lays out in the middle of the Mojave Desert. There used to be a hot springs hotel out that way but it is no longer like many of the ghost towns that inhabit the area.

And now we are here on Vegas time. It is cold and due to the weather the mountains are covered in snow. Such a contrast and so beautiful against the now brilliant blue skies.

Of course, traveling away from home increases Andre’s anxiety to a point that at times it makes me want to find the highest mountain and jump off of it. Yesterday was tough. Those are the days in which I wish autism could be turned off like a light switch. Watching him struggle breaks this Mommas heart while driving her a little crazy. The sadness at watching him and the stress I feel when he tries to pull my hair because of it can be overwhelming at times. But in the end after he is settled things return to our “normal” and life goes on.

 

 

 

Best Qualities As A Mother

/ Gardy Loo Pismire / 3 Comments

UPDATE

Since B stated 18 months ago that he might want to divorce we have done a lot to try to save our relationship. This includes a Marriage Encounter weekend, his therapist, my therapist and a joint marriage therapist. I have decreased my yelling to a trickle, have kept the house in good shape and have lost weight. Frankly, things had been improving for close to a year but lately I have noticed that we have been regressing. More grudges, less sex, 66% less dialoging, etc. I am a very intuitive person and I “feel” these changes and recognize them for what they are and lately I have been feeling really anxious about them.

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I have never been an anxious person even when I have had plenty to be anxious about. For 57 years I have kept most of that anxiety stuff swept under the rug. But lately, it has occurred to me that as B distances himself my anxiety rises. It is an uncomfortable place to be. Sometimes it even makes me question my sanity because I tell him I am feeling the distance which he denies but then three weeks later at a therapy session he uses the words and admits that when x happened he distanced himself all the while denying my concerns for the past weeks.  It is a crazy way to live.

BEST QUALITIES

Recently, we had a dialogue question that asked each of us to talk about our partners best qualities as a parent. In the allotted 10 minutes I wrote about 7 qualities that B has that I think make him a great parent.

Now I know in dialogue you are not supposed to judge the other’s response because they are based on “feelings.” And feelings may be factually true or not but the bottom line is that they are what they are. So when B wrote about the qualities he admired that I had as a parent it basically came down to the fact that “I cared for my children.” To say I was hurt that this was the only quality he listed was an understatement.

Everyone cares for their children. You care for your dog. You care whether you have enough toilet paper in the house to last the entire week. Caring for your children really doesn’t get any accolades in my book. It is something we all do… even badgers, skunks and probably even one-cell amoebas.

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So I took this to my therapist. She wanted me to write down what I wished he had said about my good qualities as a parent. Here goes:

  1. I wish he had said that I am good about seeing or initiating those deep soulful and meaningful talks when they need them to boost their confidence, understanding of life or just need to express their concerns. I wish he had said he knew that most of the time they seek me out which shows that they trust my love and advice.
  2. I wish he had said that I love my kids fiercely and deeply and that they know that they can count on that love and can trust me to be there for them forever.
  3. I wish he had said that my children know I believe in them and that I think that they can accomplish whatever it is that they set out to do and that by knowing this it will take them far in life.
  4. I wish he had said that he knows I am their biggest fans and that I cheer them on with encouragement when they are lacking the spunk to make that “final touchdown” in whatever it is they are doing.
  5. I wish he had said I am a “good” parent far more often than a “bad” one and that even when I fail it is not intentional or malicious.
  6. I wish he had said that raising six kids, two of whom have autism, would be a tough job for anyone and that it is amazing I don’t lose it every day.
  7. I wish he had said that my kids had experienced so much of this world thanks to me and that if it was left to him they would not have.
  8. I wish he had said that I try my best to teach them the important things that they will need to navigate their lives now and in the future.
  9. I wish he had said that I am “good enough” parent some of the time (which is okay) and a great parent when it really counts.
  10. I give good hugs.
  11. I wish he had said that I encourage my kids to take risks which creates opportunities for them to believe in themselves.
  12. I wish he had said I am an honest parent in dealing with my kids and all the people we have to deal with because of their interests and their issues and that my honesty helps provide desperately needed clarity.
  13. I just wish he had said I am a good mother and he could not manage without me.

And while this exercise was difficult because I kept wanting to explain or add in the negative to balance it all out, I didn’t because this is my gift to myself and a tribute to who I am as a parent. I don’t NEED B to validate it…but it would have been nice.

Breaking Records

/ Gardy Loo Pismire / Leave a comment

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I’ve lived with autism for 16 years. I have yet to understand it. Take Andre. High school student who is also taking college classes and getting A’s and B’s. Smart, right? Then why can’t he change his underwear?

Seems to me that he is on some sort of record-breaking quest because recently I have noticed a pattern which I am sure Guinness World Records would love to have a stake in.

Record Breaking Attempt #1.

Number of Days Between Showers….SIX

Yes, six stinky days. Believe me, it’s not that we are willing participants in these record-breaking attempts. It’s just that life gets in the way. Often we take notice after Andre walks by smelling like road kill and the following conversation ensues:

“Honey, when was the last time Andre took a shower?”

“I don’t know. I thought it was your month to remember all his idiosyncracies.”

“No, my month was last month. This is your month.”

“No, last month I caught him hiding cookies in the downstairs bathroom so he could have a snack when he was on the toilet. It is definitely your month this month.”

And then all is revealed when little sister pipes up with:

“Well this week is my week to clean the bathroom and he hasn’t been in there once!”

AGGGGGG…epic parental fail.

AGAIN

Record Attempt #2.

Number Of Days Without Changing Underwear…..SIX

Yes, I am at fault here. I forget that an almost 6 foot tall person may need reminders to change his underwear EVERY SINGLE DAY. The lazy mother in me is tempted to teach him to turn his skivvies inside out in order to get a few more days use out of them but butt skid marks on the outside just look worse than skid marks on the inside so I am going to let this one ride.

Record Attempt #3.

Number Of Days Gone By Without Brushing Teeth……FIVE

I know this to be true because we just returned from a holiday where I put his toothbrush in his bathroom. On the last day I asked him to go get his toothbrush so I could pack it.

“Toothbrush? You brought my toothbrush with us on vacation? Why would you bother…its our vacation.”

At home I have signs up as reminders to brush his teeth. I have placed multiple toothbrushes in multiple locations. Even at the kitchen sink. And I think that is the problem. There are so many around that, just like dust bunnies, pretty soon they just begin to blend into the scenery. Sadly, little sister who brushes her teeth numerous times a day has cavities galore. Andre…not one. Ever. He is the Anti-Christ of the American Dental Association.

 

Record Attempt #4.

Number Of Times Per Day “I DON’T Wanna” is said. 1,440 x2=1880. That is about every 30 seconds.

“Time to go.”

“I don’t wanna.”

“Did you brush your teeth?”

“I don’t wanna.”

“I think you better start on your homework.”

“I don’t wanna.”

Clean your room. I don’t wanna. Take out the trash. I don’t wanna. Take a shower. I don’t wanna. Come eat breakfast. I don’t wanna. Find your shoes. I don’t wanna.

And so it goes.

I admit, that these things, while annoying, are definitely not life-threatening. YET. But that is exactly the point. Because one day we will no longer be on this earth to monitor (even half-assed) Andre’s idiosyncracies and our fear is that one day his mummified body with rotten teeth laying nearby, will be found in year-old underwear, crushed under piles of pizza boxes and food wrappers that he refused to clean up. And like global warming; we don’t know how to stop this slide toward disaster.

The one positive thing about all this record-breaking talk is that it has spurred me on to try to break one myself.

Record Attempt #1.

Number Of Days I Remain Consistently Sane

I’m going for….

ONE

 

 

 

 

 

Maybe…

/ Gardy Loo Pismire / 2 Comments

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A month ago B told me that he was going to China for 10 days. I wasn’t invited and I was hurt as going to China has become somewhat of an annual pilgrimage for us. Besides, although it is for “business”, in truth, he doesn’t really need to go. His partner can take care of it and B doesn’t speak Mandarin anyway. It is really an excuse to just get away from the daily grind of home, office, family and me I’m afraid.

Then about 10 days ago I asked if B was going anywhere else besides the town he usually goes to because it seemed to me that 10 days in that one spot was unusual. He replied “Oh, I am also going to Taiwan” Really? When did you think you would inform me of this news? Oh, and not with your partner…by yourself. How interesting! Oh its part of your business plan now to tour facilities? So are you really going to do something different because of this knowledge you will acquire? Well no. I didn’t think so.

When I mentioned to B that I was hurt about not getting an invitation to accompany him his reply was that I was taking Gracie to Florida for a diving competition. Really? That’s the best you can come up with? I get to go somewhere with bitchy back-biting diving moms and worry about schedules, practices and hauling around a 12-year-old who has recently decided to get strung out on teenage girl hormones while you have 10 days basically to yourself. Hmmmm. Someone is getting the better end of the deal and it isn’t me.

So I asked B if this was the start of us taking vacations apart from one another. He looked surprised and said no. But I feel like this separateness is saying something in and of itself about us, about him, and about our relationship. It worries me. And so, after much thought on my part,  I told B that I think it is the start of something new for us because I will also be going on vacation alone just like he is. That I need time alone and adventure too.

Now part of me feels guilty about this. The woman who doesn’t value herself enough thinks that perhaps I am not deserving of this time alone. Most mothers don’t get it so why do I need it? The devoted wife thinks…come on…there is a difference between going somewhere on “business ” which B is doing and going just to go which is also what B is doing. There is the financially responsible person in me who says you need to save your money…you have been plenty of places so don’t be a bitch. The weary mother of boys with autism and a marriage that is still mending says…go…recharge your battery. Use this as a time of self discovery outside of the usual daily carpooling routine.

And so I am torn. Trying to decide if I am just seeking a kind of perverse tit-for-tat “revenge” for the disappointment I feel at being excluded, if I am trying to make a statement, or if I am looking out for myself in the best possible of ways and giving myself what I need to grow spiritually and emotionally. Maybe a combination of all. And as I contemplate this I am perusing the internet of exotic places…India, the Seychelles, Africa…dreaming of what it would be like to have the freedom and the guts to take a trip for me, myself, and I, with no remorse or guilt on my part. Can I do it? I’m not sure at this point but I think that 18 months of therapy and a marriage that was teetering on the brink might have taught me a few things… the primary one being is that I matter. That my dreams, needs, and thoughts matter and for some foolish reason I let go of that strong confident ball-busting young woman I once was… and that I miss her…a lot… and that I want her back. And I also wonder that if I take a chance… if I just step out and up…if I might find that confident, intelligent and oh-so-sure of herself slightly older  and more colorful woman again somewhere in India because I haven’t yet found her here.

Does going somewhere new and doing something different change you? Does challenging yourself help you grow balls? I’m not sure… but I think I would like to find out and if I do I can only hope that I will bring back so much more than I left with.

 

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It’s Been A While

/ Gardy Loo Pismire / 1 Comment

So it’s been a while since I have blogged. Life has gotten in the way. One of the reasons I have not been blogging is because I have been so ill and when you feel that sick just putting one foot in front of the other is sometimes the only thing you can manage to do.

The other reason I have been absent is that I just returned from South Korea. It was a blast. That is not to say that autism didn’t rear its head like a dragon…it did but we managed to keep the fire contained within the dragon’s mouth.

I love Korea. Not just because it is where my children were born but because of the numerous surprises that greet you while you are there. Like it raining and someone just hands you their umbrella and continues on their way. Like the fact that my children are now old enough to sit away from these two big white folks so they can blend in and become part of the majority instead of always being part of the minority. I wish I could give them that freedom every day of their lives. And I like the fact that pumpkin is valued and eaten in so many different ways.

I love seeing the small boats out with the huge freighters as they ply the waters for fish along the coast. I love the hidden temples and that sort of foggy mystical reverence that permeates the air.Riding the bullet trains are almost orgasmic with their down the the minute time tables and the snack carts that sell dried squid. I also love the open markets in which you can find the mass-produced and the antique amongst all the noise that radiates off of the stalls. And the smells of noodles of all kinds, ginger, kimchee and steaming hot bean buns bought just as they come out of the molds are to die for.

There is something about Korea…a people who have been taken over by invaders again and again. Who have known war too often the results of which allows them to then hold the holy and the beautiful above all else…even their pain. Same goes for my children whose understanding of their short lives here is bittersweet. Joy and pain sometimes it is one in the same.

And then we came home and I immediately went in for an endoscopy because I have been so sick with severe reflux for so long. And while I await the results I decided to try the anti-reflux diet and stop drinking coffee…and the next day feel so good that I don’t take the prescription medicine that never makes me feel great. And the next day I feel great. Better than great. And so I stop coffee and pills and one week later I feel better than I have for the past two years.

So now I rejoice. For travel. For discovery. For the happiness of my family. And for my health. And for the oh-so painful re-discovery of myself, my husband and my marriage over the past 18 months.dsc04814

I’m thinking that 2017 is going to be a pretty great year! I hope it is for you too!

 

Been There…Not Done That

/ Gardy Loo Pismire / Leave a comment

This is my sixth trip to South Korea. The first three were blinded by tears as we picked up our children when they were infants. Those days were short but sweet after waiting a half-a-year to finally meet them.

The last time we came to Korea as a family was seven years ago. Those were trying times. The boys were in the midst of autism and there was a real fear we would lose them on the subway. In fact, I remember that Paul decided to play hide-and-seek in the subway and scooted away into a telephone booth while we were racked with panic trying to find him. He was one of those kids who really needed to be on a leash because he would take off if given the chance. It is wonderful to see him this time…so excited to be discovering his culture. I have never seen him as happy as he was today.

On the other hand, Andre was struggling. All the walking. All the newness. All the change wasn’t doing him any favors. He didn’t want to come because change is so difficult for him. But to our credit we make him vacation with our family even though at times it would be easier for him just to stay home. There are just some memories that must be made and I will confess serenity was easy to come by in The Secret Garden.

We have never visited Seoul in the fall before. That was a mistake because the beauty of the place, the slow cool breezes make this experience memorable. The colors are vivid and more intense than I have ever seen. The scenery is amazing. But instead of telling you I will just show you…Korea in her glory.

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Heart And Seoul

/ Gardy Loo Pismire / 1 Comment

Those thirteen hour flights are killers especially when you have three kids with you who didn’t sleep a wink. Ugh. But there is something about Seoul that takes over and propels you out into its sweet arms. What a city! What a place! I love it here.

This time I decided instead of the hotel route we would do the AirBnB route and it has worked out great. Just a short walk from the subway and we found our place with no problem. It is a small three bedroom apartment located in a great part of the city with lots of shops and restaurants.

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After getting situated we walked down the street and found a great grill place in which you grill your own food over hot coals. We chose bulgogi…yummm! Slather it in pepper paste, sesame oil and something we couldn’t figure what it was and well…. it was fabulous!

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I love how they heat the coals and get them a fiery orange/red that shimmer as you just watch. Something about it is just magical.

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But now as I type the hours have caught up to me and I am falling asleep as I write. Night night!