Holes… Or When I Am Gone

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Me: I am going to miss you when I am gone (B and I are going to SLC this weekend)

Andre: I’ll miss you too

Me: Why will you miss me

Andre: You do my laundry, you cook for me, You make my lunch

Me: Is the only reason you’ll miss me is because of all the things I do for you

Andre: Well, to be honest it helps
Me: So what are you going to do when I am not able to do those things for you
Andre: Well, I guess I will get married

 

I love my son. Truly I do. But because of his autism everything to him is from a “what are you going to do for me” perspective and very rarely a “what can I do for you” thought even occurs to him. The one daily chore he is expected to do is often a battlefield and it doesn’t matter to him that everyone else is doing their part. This lack of reciprocal interaction or loving behavior on his part often makes me feel hollow inside.

With most children you have some sort of back and forth relationship. A relationship in which the child wants to please the adult in their life and vice versa. Usually it’s a fairly balanced equation. We get something and we give something back. Even if that something is just a touch or a smile. That just isn’t really important to Andre. He spends more time figuring out how to get his way at all costs than ever considering the fact that sometimes people need a hug or a kind word to keep them going. This “I give to you and you give to me” thought process never occurs to him and sometimes it gets very old. Sometimes it feels like I am doing all the giving and getting little to nothing in return. When this happens it feels like a day spent outdoors in the hot sun just digging hole after hole after hole.

For me, this is one of the hardest parts about autism; this “I don’t give a shit about anyone else but me” thought process. Give me a monster tantrum anytime. Give me nonsense talk too. Give me the messy room, the sneaking food upstairs and the snarky comments. I can take all those and more. But sometimes what I long for is just a genuine back and forth dialogue lasting over 5 minutes followed by an Andre initiated hug at the end of our time together.

If I could change how autism looks in regards to my son this is what I would change. And who knows maybe this will click into place for him someday. Until then, I will sit here and wait knowing in my heart of hearts that even though he rarely shows it that my son really does love me. For that is all I have to sustain me at the present time.

 

 

 

Doing Something For Someone Else

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For as long as I can remember I have found little satisfaction in cleaning the house. It is a job that involves a lot of hard work, very little appreciation, and with children who manage to undo what you spent hours doing in just 20 minutes, it has also been very discouraging. It’s a job that unless you announce that you cleaned around the toilet with an old toothbrush to get the “grime” not one soul is going to know about your sacrifice of digging into the yellow that has been left behind. It’s a job involving rubber gloves; a symbol of clean that sends shivers up my spine.

Now, this doesn’t mean my house looks like a pig sty…it doesn’t…but it also doesn’t look like something out of House Beautiful either. It looks like a family lives here only with a bass drum sitting in one corner of the living room and a set of bagpipes in the other.Our house looks like it is lived in by people of many ages with many different interests which is exactly who we are. Unfortunately, I am married to a man whose ideal life would be an immaculate house with a garage so clean that you could eat off the floor but he knows THATS never going to happen.

Because I am a stay at home mom, B expects some sort of order to this place we call home. Our ideas of clean are different. He does surface cleaning so that the house looks presentable, while when I clean, I go for the deep cleaning…hence the toothbrush mentioned above. This has led to problems over the years with both of us feeling resentful especially me when you tack on all the other things I do like shopping, paying bills, taking kids to the doctor and psychologist once a week, ferrying kids to lessons, gardening and a host of other things that appear out of no where and have to be done THAT day. I h.ated feeling like everyone’s maid and it showed.

But two months ago, after listening to B talk in therapy about the chaos he experienced as a child and how much his disorganized, dirty, and unkept house affected his psyche; I decided to try approaching cleaning with a new state of mind. Instead of cleaning out of an “I HAVE to do this” attitude, I decided to try and think about how happy B would be. I realized that for B, order and cleanliness makes him feel content, reduces his stress and makes him feel like he is loved. So I started trying to clean with him in mind knowing he would feel better about life if his life at home was organized and tidy. So while I am basically doing the same amount of work, with a new attitude it doesn’t seem quite so much like a thankless task or like complete drudgery. And I have noticed that this change has lightened B’s mood and he is now telling me on a daily basis how much he appreciates what I am doing.

Doing chores that I dislike really doesn’t provide a huge sense of accomplishment for me. But I have discovered that by doing something for someone else out of love elevates what I am doing to a new level. Knowing that B is comforted by a sense of order in our home is allowing me to put a positive spin on things that are more important to him than they are to me and to do them with a attitude that wasn’t there before. While I used to operate like that when we were first married, if I am honest, it has been a long time since I did things solely to please my husband just because he needed things a certain way for his own comfort. I am discovering to my own delight that doing something for someone just because you love them brings me immense satisfaction and I am reaping the benefits because of my change in attitude.  Just don’t ask me to put on the yellow gloves.

A Weekend Of Promise

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This weekend we traveled six hours to attend a World Wide Marriage Encounter. This program is put on by a segment of the Catholic Church and its aim to to strengthen and preserve marriages. Since we are not Catholic, I was a little worried but I decided from the get-go that I would take away what I needed and leave any discussion behind regarding ideas/values that I may disagree with. That was a good decision but in truth there was very little church doctrine thrown our way.

All I can say about the weekend is that it was very therapeutic and restorative. Programs were given in which the Marriage Encounter leaders shared powerful stories from their own lives and gave examples of how following the program renewed their relationships and made communication/intimacy easier. Listening to the hardships and disappointments of these couples really helped B to understand we were not alone. Seeing their relationships and the intimacy they shared made us want the same for our marriage too.

We spent the weekend writing and learning to dialogue with one another. For someone like B, who finds sharing and even discussing FEELINGS difficult, seeing other men who were in the same boat as he, but have learned how to share and behave differently was a huge break through. The most important things we learned were:

  1. Feelings are neither good nor bad. It is the actions that follow the feelings that can be good or bad.
  2. The difference between thoughts and feelings. Thoughts include judgements, beliefs, ideas, perceptions and opinions while feelings are spontaneous inner reactions.
  3. If you can replace “I feel” with “I think” then you have expressed a thought not a feeling.
  4. If you can replace “I feel” with “I think” and it doesn’t make sense or if you can replace “I feel” with “I am” then you are most likely expressing a feeling. For instance “I feel irritated about this” it doesn’t make sense if you say “I think irritated about this” so it is a feeling. You can also identify a feeling by saying “I feel irritated about this” and then replacing the “I feel” with “I am” “I am irritated about this” so it is also a feeling.

There was also a priest there who participated and shared about his journey and disappointments with his vocation. He was so honest and forthright about his life. It was refreshing. I think for some of the men hearing the struggles of a priest allowed them to really look at their own lives and to open up.

It was an INTENSE but amazing weekend full of hope and promise. The feelings and intimacy we shared was much needed and appreciated. We both felt like we came away with the tools to improve our marriage and make it be the type of relationship we both need and desire. And we both had felt a renewed commitment to our marriage and each other.

Yet, I think the thing that touched us the most was when we found out we had had two couples who had gone through Marriage Encounter praying for us and the healing of our relationship throughout the weekend. I have to admit that prayer is a iffy thing in my book and I have always felt uncomfortable with others praying or asking for things on others behalf. It has just never sat well with me. Yet, to know that people we didn’t know were wishing us well, encouraging us through prayer and rooting us on just amazed me and somehow it felt like a blessing rather than an intrusion. But what was even more amazing was that after the weekend was over and we were exiting the building there were those same couples who had prayed for us standing there welcoming us with their insight, love, the candles they burned for us and flowers…well, it caught us both off guard. We felt encouraged, joyful, honored and amazed that strangers would do all this for us with the hope that our marriage would come to a place of peace and harmony.

There are not many times in life where you truly get to feel uplifted and amazed while experiencing positive changes working within your own life. This weekend was one of those times and it leaves me hopeful and gives me the ability to dream again about our future together. It doesn’t mean that we will be free of troubles but we have some more tools in our tool belts and how they work make sense to both of us and we are both willing to take them out and use them to improve things between us.  I hope you will root us on too in whatever way you choose for one thing we learned this weekend is that we can use all the help we can get to take our relationship in the direction that we want it to go.

 

 

Suffering

When my therapist says, “Love doesn’t mean you won’t suffer,” I gulp. Hard. For this isn’t what love is suppose to be. I grew up with the promise of the movie Love Story…love until the end of time that went hand-in-hand with the often quoted  “Love Means…Never Having To Say You’re Sorry!” I find myself wondering where did the ideals of the 70’s go and how do we get them back?

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The definition of suffering is

suf·fer
ˈsəfər/
verb
1.
experience or be subjected to (something bad or unpleasant).
“he’d suffered intense pain”

2. To tolerate, put up with, or endure

 

Frankly, I don’t remember saying any of those words in my wedding vows. I mean, who would willingly stand up and say “I promise to tolerate, put up with, and endure life with you throughout all of our days” in front of God and our loved ones? Seriously!
Instead, the vows we most often robotically repeat go something like this:
“I, ___, take you, ___, for my lawful wife/husband, to have and to hold from this day forward, for better, for worse, for richer, for poorer, in sickness and health, until death do us part.”
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Frankly, when most of us marry we really do not have the experience in to understand what those vows really mean and how they will impact us at some point in our lives. Most likely we haven’t been through better or worse yet; we haven’t done the for richer thing yet; and hopefully the sickness and in health part is something we don’t truly know about until we are very, very old. It would appear that vows don’t have a lot of meaning unless you suffer. Really suffer and emerge intact.
So after 30 years our love/marriage is suffering. Greatly. The “for WORSE” part of our vows has kicked in and I’m not even sure how to return to “the BETTER” part. Where is the road map to re-negotiating your place in your marriage after a lifetime of habits and relating to one another in certain ways?
If I am honest, suffering has never seemed like a particularly noble thing to do. I had so many terminally ill patients whose families seemed to believe that keeping their loved ones alive, even though they were suffering tremendously, was somehow important and noble. Calling a CODE in which everything is done to save someone’s life when they are terminal is cruel. I see nothing noble in suffering and I am convinced that the lessons learned are not important enough to endure all the pain.
Therefore, if suffering is part of love I guess I am lucky not to have done much of it up until this point. Yet, I also realize at some point the suffering has to end. I am just hoping we can reach the “for BETTER” part before a CODE is called and our marriage has flat lined.
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Past Tense

I have trouble living in the present. I ruminate about the past and have difficulty letting it go. I also worry about the future endlessly. It does me no good and I know it but I continue to do these things to my own detriment.

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Recently I read something that resonated with me. It said something to the effect that if I hold on to the past with one hand and try to grasp the future with the other, I have nothing to grab onto with today.That got me thinking.

While I would often like to have missed many moments of this past “maybe divorce” year, the fact is that they have been important. They have taught me things about myself and my relationships. They have forced me to examine things that made me uncomfortable and given me the courage to change those things that were under my own control. I have had to learn to try and see things through a different lens and to operate through one too. There have been challenges I have overcome and heartbreak that I have never felt the likes of before but managed to survive and sometimes even thrive. And all of these experiences or “ah-ha” moments have happened when I have lived in the present, let go of the past, and stopped fearing the future.

I’ll be honest, living in the present has not been easy. It still is not and it doesn’t come naturally to me. Yet, I hope that by remembering all I have learned from being in the present, I can continue to rejoice and celebrate the wonders that happen to me everyday when I just let them happen. So now I am practicing giving myself permission to just be in the moment with my hand and head securely wrapped around the notion that to be present is to live fully. I think its something worth striving for.

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Love Letters

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Recently someone contacted me (after finding my family tree on a genealogy site) saying that they had found a box of letters from 1912 from my 2nd Great Aunt (I’ll call her Mary) to her then boyfriend who later became her husband. She had three boys from an earlier very bad marriage and in stepped (I’ll call him Ned) to love and cherish her and the boys. Not many men would have had the heart or the courage to take it all on but he did and I know that Mary and her sons were blessed to have Ned in their lives for another 51 years.

There are about 40 letters in all and they are courtship letters. Mary and Ned were separated at the time by two long train rides from one another and they were trying to find a way that they could be together as a family but things were hard and there was not a lot of work where my Aunt lived, so Ned went to the “Big City”  to look for work. One of the bonuses of these letters is that my Grandfather is mentioned in them twice. He was about seven at the time. In one her letters to Ned, Mary says that my grandfather said to her son, “Do you think that man is going to marry your mom?” He replies “I reckon they might.”

Throughout all the letters there are pronouncements of practical love and a few glimpses of passionate love too. In one letter my Aunt talks about what might happen if they were to work together and says, “But if we do you have to promise to keep your hands off of me while at work!”

These letters are nice reminders of how early in relationships we do our best to impress, to praise, encourage and to believe in the possibilities that lie ahead. I think that is often missing as marriages mature and the letters have reminded me of just how important those kinds of gestures are in everyday life. Mary and Ned’s belief in their love and their future together is strong and its an overriding theme throughout their writings. It was important to them to believe and celebrate what they had and what they had found in each other. It’s some thing I want to rediscover in my relationship too.

Ever since B brought up the”maybe divorce” I have had difficulty celebrating what we have had, what we do have, and what we might have. Yet, as Mary and Ned have shown me celebrating a relationship and each other if important. It is a must do and it serves a much needed purpose to foster love and a sense of connection. So I have decided that if I want B and I to be a couple, I have to live like we are a couple and act as if we will be together forever. I have to believe in the possibilities that still exist for our marriage if this relationship is to survive. I must:

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Alone

For the first time in about 30 years I am alone. I am by myself with absolutely no one near. For once I am completely and utterly alone. It feels strange and I am not really sure I like it. I wonder…is this what divorce feels like?

I thought being alone would feel wondrous…and it does. Walking around in my underwear has its perks. Sleeping alone naked in bed does too. Having a clean kitchen when I woke up just like I left it the night before seems analogous to some sort of religious experience. Eating when I want, if I want, brings new meaning and new tastes to food. I can sit and type all day or take a nap with no schedule to tether me to the world’s beck and call.

Yet, being alone feels uncomfortable too… like a woolen sweater meant to keep you warm but instead of the comfort it is suppose to provide it drives you crazy with an itchiness that you just cannot scratch. It feels raw like a Chicago wind in the middle of winter or that elusive pebble in your shoe.

The silence here is deafening. I hear the hum of the refrigerator and the click of the heater as it turns on. Every noise is amplified because of the stillness and as I sit outside sipping my coffee it sounds like I am on a school playground with the calls, caws, and swoops of the birds flying about.

The freedom to do anything I want is almost like a noose around my neck….so many things to do with so little time. I count the hours until I have to leave as I wait for the telephone repairman to show up so I can get on with my day. I have cliffs to climb, trails to follow and things to discover. I want to know if these things are as meaningful when discovered alone or is there a greater meaning when it is a shared experience with someone you love?

Alone is freeing. Alone is confining. Alone is amazing. Alone is lonely. Alone is what I want to be right now and I am thankful that I get to experience what it feels like to be alone. Just me, myself and I.

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Later as I walk the cliffs I discover that I really am not so alone after all.IMG_6923

Weight’s Burden

*This has been an incredibly hard piece for me to write because it puts a lot of my own faults and flaws out there but I believe in being honest in my writings and telling my story through my lens whether it be right or wrong*

 

My weight has always been a sore subject with me. When I was a child I was average, not overweight nor underweight.I was just right.Yet, it was never enough. I wanted to look like the popular skinny girls. The ones with legs up to their elbows. The ones you could almost see through because they were so paper thin.

In my early 20’s I was underweight weighing in at 111 while being over 5’7″ tall. Of course, everyone thought I looked fabulous, myself included, with my bones sticking out the way the media says that women are suppose to look; when in reality my health was suffering. But I had a lot of attention paid to me by the opposite sex so it appeared to be a fair tradeoff as far as I was concerned. Like=skinny. Love=skinny. Sex=skinny, so that is what I would be. Only it didn’t last.

Then several years later, I became pregnant and gained 60 pounds and B told me that he didn’t really find me attractive. He made it clear that overweight women did nothing for him. I remember thinking even then how fucked up this was. I remember thinking whatever happened to loving a person for who they were and not what they looked like. I remember feeling that I had to look like some centerfold to be loved by him. I felt resentful and angry which lead to over eating which lead to being over weight which lead to a fucked up thoughts of him having to prove he loved me because I was heavy.Do you love me now? became the challenge. Do you accept me now? became my battle cry. And no matter how much he tried to prove his love/acceptance I wouldn’t believe it because I knew how he felt about fat women and, well, I didn’t love and accept myself either…so how could he?

For years I dieted “for him” and for years I was in a never ending cycle of gain/lost. And when I lost I was mad at B because he paid more attention to me than when I was heavier and I was wounded because of it.  How screwed up is that! Yes, I know… pretty screwed up! Why can’t you just love me for who I am? Yet, he did but I couldn’t believe it because with those few words said years ago about not finding me attractive created a pit from which I chose not to climb out of. A pit that I gave up and into. Wrapping my body around it like a blanket to keep me warm. Anger and resentment piled up and so did the pounds. I was miserable. So was he. Making love in the day light soon changed to making love with the curtains drawn so no light could enter the room.

Finally, I decided that I was tired of looking the way I did. Feeling the way I felt. Joints aching due to the excess poundage, surgery too. I had admired women who felt good about themselves no matter what their size and wished I had confidence in my body and myself. I wished that was like that too. But I was not no matter how I tried. So I slowly began to lose weight but I still wasn’t very serious about it. Until I saw this scan:

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A scan of a 250 woman vs a 120 pound woman. And I could see how the bones of the leg were being impacted. The white fat around the heart, intestines, and in the brain. And that was all it took…with one look at that picture I realized that being overweight was no longer an option. And this time I have lost weight ONLY for me, myself, and I.

In the past 8 months I have lost 30 pounds. And over several years prior to that I had lost 30 pounds. I now set little realistic goals for myself and today I reached the one I had set to reach before I turned 56. Yeah for me!

In retrospect, it is sad to me that I wasted all those years being unhappy with my weight and not doing enough about it. It is one thing if you are accepting of yourself it is another if you flog yourself because acceptance is not in your vocabulary. I wish that society just celebrated all women for who they are instead of what they look like, perhaps, I would have internalized that and loved myself despite of my weight. But I will never know. What I do know is that being miserable about my weight made me miserable about many parts of my life in general. That it is not B’s fault that I chose to overeat and that punishing him and myself for words spoken so long ago was harsh and unnecessary. And that something that was solely under my control was put back on him many times over our 30 years history. And if I am totally honest I am not sure that I would find my obese spouse sexually attractive either.

This unwanted “I might want a divorce” journey has forced me to examine all areas of my life. This work to discover the authentic me has proved humbling, exhausting, painful and eye opening. I have discovered some things that I really didn’t like and needed to change and some things that are pretty terrific about me. And I am still journeying…to where…I am unsure. But one thing I know is that I feel better about myself in all areas of my life because I have finally internalized the fact that the only person I have to impress or lose weight for is ME. It’s all for ME. ME. ME. ME. Finding my own importance has somehow flipped the switch and finally allowed me to reach my goals both in regards to my weight and in other parts of my life.

 

 

 

 

Turtles

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Today I was walking by the irrigation ditch trying to get my 10,000 steps in for the day. Last week it was full of cool rushing water but this week there was nothing; the water diverted for some other farmers fields probably to nourish the long rows of walnut or peach trees that rise out of this fertile ground like rockets waiting for a signal to launch. As I looked over the railing I saw two turtles sunning themselves on a rock. How did they get there? I mean its not as if they were in a wet lands area with abundant water. They were parked in the middle of a small but rapidly evaporating oasis.

As I pondered this it got me to thinking about my own life. How did I land here in this particular place at this particular time? B’s job.Further, is this a good place for my soul? No. Does it bring me joy to live here? No. Can I stretch my mind to places that it has never been before? I am limited here. Am I able to sun on a rock and be content? Not without the neighbors watching. As you can see I would probably be happier somewhere else. And like Dorothy I would like to click my heals together and be back where my heart’s desire is. But where is that? What do I need for my soul to heal from my own transgressions and from a broken 30 year marriage?

I have been pondering this question for quite a while, ever since B stated he wanted a divorce. Of course, he mistakenly assumed that should we divorce I would take the kids and I would be stuck here, in a place I do not want to be and could not afford if I was single. But that may not play out the way he originally envisioned it. Because I have been re-engineering my life should things change and I have decided that one of the things I will do is move to a place that gives my soul nourishment and meaning. To a place I want to be with small shops, big pines and the ocean nearby. Someplace where the air is fresh and clean. Someplace that I can call home.Forever. Without the worry of someone else’s wants and whims influencing where and how I live. For I want to be like the turtle, sunning myself on my own rock, without a care in the world.

In The Hands Of Fate

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Sometimes I look over and see the silhouette of B moving against the morning sky, purple and pink, rising over the peaks of the mountains as morning escapes from yesterday’s grip. I see a man, handsome still, in the middle of mid-life crisis trying to make his way towards tomorrow and whatever that looks like; a life he can no longer define nor see for the house of cards he built has fallen and taken him down with it.

I sneak a peak, my eyes heavy with sleep, as his pants slide over his lean legs, over that smoothed over scar that he got when riding his bicycle, pedaling as fast as he could before flying over the handlebars and landing on a sharp rock along the creek. That was a 5 stitcher and he wears it like he owns it because it is now part of who he is and has been for some time. With a swift tug on his pants I see what I imagine to be that same sense of determination and the speed with which he rode that bike but using it now so that he doesn’t have to slow down and make those hard decisions. About himself. About me. About what he is doing or not doing with his life.

As I lay in bed I hear the coffee pot downstairs start to gurgle and come to life. He sits quietly reading the Bible until I hear the pull of the yoga mat and the PLOP it makes as it lands squarely on the floor. Now he will exercise for 12 minutes. No more, no less. Then in go two slices of toast which magically pop up and in 2.5 seconds they will be slathered in warmed butter topped by a generous helping of tart thick lemon curd. The coffee cup I bought him in Michigan drops softly to the counter like water on stone and the refrigerator door softly opens, the coffee creamer in the impossible to reach left hand corner. It never fails.

Sometimes I wonder how it would feel to leave him? Would I miss him alone or would it be all the familiar sounds that accompany his  particular way of doing things…fast, precise, and predictable that I might someday long for? Or are both so interwoven one cannot be thought of without being accompanied by the other? Would I  think of him every time I heard a toaster pop from now until eternity? Eternity is a long time, after all. Is it something as simple as a toaster that makes you stay?

Leaving seems like such an easy thing to do. We leave our children, we leave our friends, and we leave our co-workers but most of the time we have the luxury of knowing we are coming back. How do you put one foot in front of the other if you are closing the door forever? Leaving scares me because I know without a doubt that if I left the loss would be immense, carrying me downstream like a river that has jumped its banks. Can you grab onto something to save yourself when you are being swept away so fast or do you just go under? Do you scratch, claw, and cling until your own blood is shed before moving on or do you step lightly onto the nearest rock with your dignity and grace intact?

Of course, I also know that if I left there would also be relief. Not in leaving him per se but in finally being out of the limbo that has wrapped itself around my windpipe for the past 9 months, squeezing so tight that air can neither come nor go…stuck somewhere in that thin membrane that separates life from death. To taste the crisp air and to rid my lungs of the stale would be a blessing.

Yet even with all the questions and angst, I know that I would miss B desperately. His humor, how he takes care of my sexual needs before he worries about his own, and the shine in his eyes as he watches our children grow into themselves.  I would miss all that we have shared and created…the houses we built, the closeness we had that once knew no bounds, and the walks we have taken through fallow fields in order to start anew. I would miss my best friend, my travel buddy and the man who I watched tenderly hold each child, some born of him, some not; and give them the life and love that each person deserves. We have mostly had an amazingly rich life together and for that I am thankful.

While I stand on this precipice I also think about my own transgressions. I realize that in the past several years I have been so deep in my own pain and worry that I couldn’t recognize the extent of his. His fears about his job, getting older, providing for children with special needs, and living with a woman he doesn’t understand and who no longer understands him. And I confess that even if he could have told me his hurts, sorrows and pain, that I may not have been in a place to hear him and to understand that the depth of his pain was so old and so deep that it had turned to crude.

And so I wait. Trying to act and not react. Trying to find peace within myself before looking for anything from him. And in the back of my mind I wonder that if that time comes to leave…will I know it? Will I recognize it for what it really is or will I see it through my own imperfect and distorted lens… pushing things forward at a pace that makes us fly over the handlebars resulting in a patchwork of stitches; the resulting scars forever visible for all the world to see. Or can I just decide to stop pedaling and make the decision to coast; in an attempt to find contentment with where I am at this point in time and in no hurry to reach some unknown destination? For one thing I have discovered is that we often meet our fate on the road we take to avoid it and truth be told, I am in no hurry to find out precisely what it is.