Stress Eating/Mental Health Nightmares

I started my diet to lose 20 pounds at 6:00 a.m. It is now 11:30 A.M. and I have downed two pieces of fudge, drank another cup of coffee that is mostly milk and devoured a bag of moon cheese. All within 30 minutes.

I had good intentions. Truly I did. And I was sincere too in the belief that this week would be the one I got off my kester and set to work reducing my waist but at this point my resolution appears to be a waste… for life got in the way.

download-4

It all started yesterday. I drove home from Las Vegas after Gracie’s dive meet where she took a first in one event. So proud of that kid. Anyway, after driving 6 hours I was met at home by an angry teenager. Paul was fine while we were gone but seems he and Gracie got into it the moment she came through the door.  An hour later I was holding him while he melted down and cried. Damn you autism and mental health challenges!!!!

you-tube-logo

After those difficult and emotional moments it appeared things were better until I decided to spoil myself with a nice warm bubble bath.  And therein lies my first mistake…actually thinking that I could do something nice for myself without being interrupted.  For as I lay in the tub I suddenly heard very loud shouting and a slamming of a door that shook the entire house. As I jumped up and wrapped a robe around me I heard uncontrollable crying coming from Paul’s room. I walked into a mess caused by a kid who had dumped, in a rage, the contents of his desk all over the room and he was sobbing. I went over to him and he yelled at me to leave him alone. Now I don’t know about you but when I hear those words spoken with the tunderous roar of a fighter jet I know that I am needed more than ever. I also know I need to change into my Green Beret mentaility to succeed in turning things around despite the odds being against me.

download-6

 

What ensued was not easy. I ended up on the floor while this child both raged, hyperventiled and talked scary stuff. I held onto him like his life and mine depended on it. This went on for almost an hour until at last he wore himself out. His words broke my heart. His pain broke my soul. And his anger touched a place in my brain that I never want to visit again.

Later, after going down to the kitchen I realized what the problem was. While I was gone he had not taken his medicine and B had not checked his box to make sure that he had. Two days without meds in Paul’s case is a disaster. He becomes a tsunami of emotions that threatens to wipe out anyone nearby and the result is anger that cannot be contained.

I worry about my son. I worry that one day he will rage at the wrong person. I worry that while “out of his head” he might get shot by police or hurt himself. I worry that in his anger he may seriously hurt his siblings instead of a kicking a hole in the door that is a reminder of when he got seriously mad. Sometimes I worry that his mental issues will engulf us all and carry us down the mountainside with him broken and  buried under tons of stone. I know my marriage has been effected by Paul’s issues and that we all suffer in different ways when he is off-balance and out of control.

This morning, I packed everyone’s lunches and drove each one to their school. I proceeded to the gym in order to kick my diet into high gear. As I was nearing my goal of three miles I received a phone call. Paul was having an anxiety attack at school and could I please come and get him?

He’s sleeping now. His face soft and relaxed. Quiet breaths making his chest rise and fall in a slow steady rhythm unlike yesterday when he sobbed so hard he chest was moving mountains. I look again and my heart fills with love for my son; this boy who feels others emotions so intensely and takes them on as his own. This boy whose face I first saw on an adoption site. Right now, he looks like an angel which is what I am afraid that he might someday be. For unless, we can find a way to teach him to control his emotions I am afraid he will be hurt and possibly killed. By a stranger, The Police. Or himself. Either way, our path is a hard one and we are scraping our knees as we once again escape the sharp edges of the precipice which is our lives.

download-5

 

Eat Chocolate Cake

images

The school called today

Andre didn’t turn in his homework

He said he burned his book

I don’t think so but…

I eat chocolate cake while I contemplate the situation.

The other school called about Paul

The teacher tells me there is a group issue

Paul is missing assignments

I will check and let you know….but first

I eat chocolate cake before digging around in his room

I go to the school to discuss the situation

I let all involved know

That Andre will be staying after school in the tutoring room

Everyday until all the assignments are done

He clings and claws at me

He baby talks and pouts

I escape and walk around campus

And eat that emergency piece…

Of chocolate cake

That I tucked in my purse

Really this is getting too much to manage

Maybe I should turn to booze

And give up the chocolate cake

We get home

Paul is upset because I insist that he does his chore

That he did not do before he went to school

Man, that chocolate cake looks good…tastes better than it looks

Two boys with autism

One deep dark chocolate cake

Almost gone…

Autism makes you fat!

Been There…Not Done That

This is my sixth trip to South Korea. The first three were blinded by tears as we picked up our children when they were infants. Those days were short but sweet after waiting a half-a-year to finally meet them.

The last time we came to Korea as a family was seven years ago. Those were trying times. The boys were in the midst of autism and there was a real fear we would lose them on the subway. In fact, I remember that Paul decided to play hide-and-seek in the subway and scooted away into a telephone booth while we were racked with panic trying to find him. He was one of those kids who really needed to be on a leash because he would take off if given the chance. It is wonderful to see him this time…so excited to be discovering his culture. I have never seen him as happy as he was today.

On the other hand, Andre was struggling. All the walking. All the newness. All the change wasn’t doing him any favors. He didn’t want to come because change is so difficult for him. But to our credit we make him vacation with our family even though at times it would be easier for him just to stay home. There are just some memories that must be made and I will confess serenity was easy to come by in The Secret Garden.

We have never visited Seoul in the fall before. That was a mistake because the beauty of the place, the slow cool breezes make this experience memorable. The colors are vivid and more intense than I have ever seen. The scenery is amazing. But instead of telling you I will just show you…Korea in her glory.

dsc04842

dsc04814

dsc04782

dsc04873

dsc04865

dsc04852

 

On Giving Love When You Have None Left To Give

images-6

Sometimes my house is pure 100% chaos. Sometimes it is as quiet as a lamb. Most of the time it is somewhere in between. But then there THOSE TIMES; the times when Andre digs in and NOTHING I can do will change the trajectory that we are about to embark on.

Change for Andre is difficult. It often is for those on the autistic spectrum. Sometimes that change is as small as using grape jelly as opposed to strawberry on Andre’s PB&J. But more often it is something along the lines of telling him to do his chore.

“Andre you need to empty the dishwasher!” (for the third time)

“I dun’t want to”

“There are lots of things I don’t want to do either but they must be done so empty the dishwasher. NOW”

“I dun’t want to”

This I dun’t want to would go on 100 times if I permitted it. Usually at this point the conversation will escalate to one more warning. Then I head upstairs (with him trying to stop me…pulling on me or poking at me) and take all of his electronics and tell him that he can have them back when his chore is done.  This is followed by ten minutes of attempted manipulation, threats (I’ll put your phone in the sink if you don’t give me back  my stuff) and flat out increased defiance. Finally, Andre will realize that he has gone too far and then resorts to such things as:

“Tell me you love me mom”

“I need love. Give me a hug NOW.”

I want a kiss NOW”

Along with all the demands he begins hanging all over me DEMANDING a hug or a kiss by clawing at me.

Of course, by this time I am worn out and tired of the CRAP. I try to remember where this is coming from inside his head (fear of abandonment/fear of being unlovable/anxiety) and react accordingly. But there are times when giving him what he needs (a hug) feels so ugly and disingenuous after all the chaos and manipulation that I find it hard to wrap my arms around him. I find it hard to find a place in my heart to grant him the grace that he needs. Most of the time I manage to dig it up from G** knows where but there are times it is almost impossible to find and it is at those moments when I feel like I have been swallowed whole, the best parts of me ripped out and flung far and wide. It is at these times when I start crucifying myself for not being able to give my son what he needs because it is such a little thing that feels so big.

Luckily, most of the time I do not get to this place of self torture because as I start to fall down the rabbit hole; I get ensnarled in the tree roots and find a foot hold to make my way up again. But there are times that I would like to keep falling down that rabbit hole just to feel the impact upon landing. To feel the brokenness that results. And when that happens it makes me realize that is probably what Andre is feeling (the impact) and then I find I can go over and give him that hug. A hug that will ultimately mend us both. A hug that that tells him that I love him and he loves me and that we are in this thing called autism together. Forever.

images-1

 

 

Departing Wisdom

Running-Late

Recently I saw a sign which read: WHEN ANGER ENTERS, WISDOM DEPARTS. These words touched my heart as well as the profound which rests in my soul. I felt as I read this simple truth that the words were meant for me alone and that they were there because I needed that gentle reminder.

This summer has been hectic what with sports practice five days a week, my volunteer work and with my chauffeuring  kids to college and high school summer school. The reason for my increasing anxiety over the summer is a very tight schedule in which pick up and delivery had to be perfectly timed. Frankly, I don’t do being late well. For whatever reason since I was a little kid it was hardwired into my brain that you are not late. EVER. And I have lived by that rule my entire life. Except once. That was the time I was 5 minutes late and it haunted me for days.

“If you are late it shows a complete disregard for others and that you think that your time is more important than theirs. Your time is no more or less important than any one else’s. Don’t forget that!” admonished my father throughout my growing up years.

And so I have a heightened sense of anxiety if I have the slightest inkling that I (or anyone I am responsible for) will be late.

The lengths to which I go to ensure that I am never late come with a price…my sanity. I am three hours early before taking an airline flight. I am 30 minutes early for my Gracie’s orchestra performance. I am early enough to get my choice of premium parking spaces and my favorite pew at church. I get the best seats at the movie theater and I am always the person who is waiting for their friend to show up for coffee. Anyone who knows me knows that if I am 10 minutes late that means I am probably stone-cold dead.

images-7

And so with back-to-back obligations this summer it is hardly surprising that I found it difficult to just stay calm. Unfortunately, as my anxiety rose it often turned to anger. This is not to say that I yelled…I didn’t…but irritation crept into my voice way too often and words came out of my mouth that that are not meant to be heard by a child. Thoughts of shooting the bird to that 85 year old woman driving at a speed of 10 miles per hour entered my mind on way too many occasions. And as my anxiety/anger increased I became distracted and I once almost mowed down a kid on a bike doing stupid tricks in the street to impress his buddies.

As I reviewed my actions during these dog days of summer  it became apparent to me that in those moments of high anxiety and anger; my wisdom did indeed depart because:

I said thoughtless things.

I thought evil thoughts.

I showed my children a side of me that they do not want to see.

And I disregarded my own health by letting stress take minutes off my life multiple times a week.

So in an attempt to increase my sanity I made a change. I now have the saying WHEN ANGER ENTERS, WISDOM DEPARTS taped to my dashboard. I find it comforting. And now as I drive along and the tension starts mounting, I just look down to give myself a gentle and loving reminder that wisdom in all aspects of my life are important if I am to become all that I am meant to be.

imgres-8

 

 

Happy Birthday

Yesterday Andre turned 15. It hasn’t been the easiest journey getting him there.

Autism sucks. The endless meltdowns, constant push backs and never-ending trips to the schools. Countless hours of driving back and forth for therapy: hippo, occupational, psychotherapy just to name a few. The still unresolved issues of cleaning up after himself and throwing wrappers wherever they land. And the inability to consider other people’s interests and emotional needs instead of his constant “ME, ME, ME” thinking can leave me discouraged and exhausted.

Putting Andre on numerous drugs to control tics, anxiety, and severe ADHD wasn’t on my radar. I hate using these medications the combination of which can cause side effects that go bump in the night. And the cost, even with insurance, is astronomical. But managing him is easier with them than without and he doesn’t like how he feels naked and exposed when he forgets to take his meds.

Having two boys with autism has put our marriage under stress and considering divorceimages-5. Disagreements over how to approach IEPs, how to get Andre to comply, where we should be putting out money in our never ending quest to get the boys the skills they need to navigate life. Being totally exhausted hasn’t done wonders for our time together, especially in the bedroom.

I have been at my best and at my absolute worst because of autism. I have fought harder than I ever imagined I could trying to get services. I have loved fiercer than I ever thought I knew how. I did mundane tasks repeatedly in hopes that Andre would “get it.” I have also yelled louder, gotten angrier than I ever thought I was capable, and said a few words I desperately wish I could take back. Autism has at times brought out the Jekyll and Hyde in me and taught me things about myself I desperately wish I did not know. And PTSD-like symptoms still linger when I hear prolonged screaming.

But to his credit. Andre works harder than any one I know just to survive in the world. He fights anxiety, he has severe insomnia, bright lights bother him while loud noises used to do him in. Socially, he lives in a very isolated place. He wants friends but doesn’t know how to act so that people want to spend blocks of time with him.He is very close to beginning work on his Eagle Scout, he has saved the life of a elderly woman, and he carries amazing grades in school. He loves band, once memorized a 200 page book word for word, and he can name every dinosaur known to man including where they lived and during what period.

Recently, I asked Andre if he could take a pill so he would no longer have autism if he would do it. He replied, “No, because this is who I am and I like me.”

And even though this autism journey with Andre and Paul is not the one I signed up for (think European Cruise vs Survivor in the Outback); I also know that my boys are becoming young men who are an asset to the community and our family. They will make their way in life. It may not be the life I envisioned but both boys can and will make a life that they are happy with and can be proud of.

Yes, autism sucks but for some kids with this disorder there is a light at the end of the rainbow and in this past year its brightness has intensified and let us see the light where darkness once roamed. Autism sucks but it does not rule us.

Happy Birthday, Andre. You are deeply and dearly loved. I hope others will learn to accept and love you too.